Lists: Touched By Lyme blogs

Touched By Lyme Blog List

April 23, 2024
LymeDisease.org’s 35 years of advocating for you
March 7, 2024
“Long covid looks exactly, and I mean exactly, like chronic Lyme.”
February 23, 2024
Her art reflects long-term struggle with unrecognized Lyme disease
February 22, 2024
Zooming with Congress for more Lyme funding
February 13, 2024
PODCAST: What it takes to heal from Lyme disease
January 18, 2024
Support group question: “Does anyone ever get better?”
January 10, 2024
British soap opera to feature Lyme disease story line
January 4, 2024
The strong connection between microbes and mental illness
January 2, 2024
Salon.com looks at the plight of chronic Lyme patients
December 13, 2023
Sign up now for 2024’s virtual Lyme Fly-In
December 5, 2023
34 years of fighting for what Lyme patients need most
November 17, 2023
Thanksgiving in the Lyme world, 2023 edition
November 10, 2023
NYC marathoner raises over $10,000 for LymeDisease.org
October 27, 2023
CDC now lists Lyme as infection that can cause chronic symptoms
October 6, 2023
Baker Tilly grants wish to support LymeDisease.org
September 29, 2023
“Standard” Lyme testing once again proves fatal
September 28, 2023
Need help paying for Lyme testing and treatment?
August 25, 2023
The complex story of the Lyme disease vaccine
August 18, 2023
Does it take a millionaire’s fortune to heal from Lyme disease?
July 14, 2023
6-year-old Arkansas boy fighting for life after tick bite
July 5, 2023
“Words matter.” A new way of thinking about long-haul diseases.
June 29, 2023
O’Rourke helps set the tone for NASEM workshop on long haul diseases
June 22, 2023
There are sex-based differences in Lyme disease. Why this matters.
June 2, 2023
Seeking a cure for long-Lyme, long-COVID, and other persistent diseases
May 8, 2023
Children’s books aim to educate about Lyme and ticks
May 3, 2023
From illness to activism, Olivia just keeps going
April 25, 2023
This easy-to-read guide is packed with useful information
April 13, 2023
Surveying the interrelationship between Lyme disease and COVID-19
March 24, 2023
Prophetic last words: “The stuff I’ve been going through in my brain–ugh”
March 8, 2023
Documenting the reality of chronic Lyme patients through photos
March 3, 2023
Final TBD Working Group report reflects patient contributions
March 1, 2023
“Fierce” Lyme advocates sponsor Utah showing of The Quiet Epidemic
February 24, 2023
Advocates zoom with Congress for more Lyme funding
February 17, 2023
National Academies take on thorny issue of “long-haul” diseases
February 2, 2023
Who will represent YOUR state? Maybe YOU?
January 5, 2023
“Ehrlichia, Rhapsody in Discomfort #6″ wins Global Music Award
December 4, 2022
Sign up now for 2023’s virtual Lyme Fly-In
December 1, 2022
How your support helps us do the things we do
November 29, 2022
‘Gaslighting’ is Merriam-Webster’s 2022 word of the year
November 18, 2022
Broadway star’s secret battle with neurological Lyme disease
November 16, 2022
What this boy learned young about his mom’s chronic Lyme disease
October 21, 2022
Spoken word poetry puts different spin on “PTLDS”
October 11, 2022
After 6 years of TBDWG, are we still stuck with IDSA guidelines?
October 6, 2022
WNBA’s Elena Della Donne & Nike team up on “Lyme” shoe
September 29, 2022
Some thoughts about 30 years of misdiagnosed Lyme disease
September 28, 2022
“Hijacked by Lyme”: Quebec coroner calls for inquiry into suicide
September 16, 2022
Upcoming screenings of Lyme documentary “The Quiet Epidemic”
September 9, 2022
LymeLight Foundation sharpens its focus on congenital Lyme disease
September 6, 2022
Åland, a province of Finland, issues stamp highlighting tick research
August 31, 2022
Conservatorships can trap families in a web of conflicting interests
August 23, 2022
What the CDC website gets wrong about Lyme disease
August 19, 2022
CDC announces major agency overhaul; what about Lyme?
August 17, 2022
Does your partner have Lyme disease? This book’s for you.
July 27, 2022
Is there a link between Lyme disease and breast cancer?
July 13, 2022
“Ninja Foods” helps kids with Lyme choose food that heals, not hurts
June 23, 2022
When Lyme is misdiagnosed as mental illness–“A road to nowhere”
June 21, 2022
How new treatment approaches help chronic Lyme patients
June 8, 2022
He bucked the establishment to help kids recover from Lyme disease
May 16, 2022
TOUCHED BY LYME: Avoiding a heart transplant by treating Lyme disease
May 9, 2022
TOUCHED BY LYME: #TickCheckChallenge teaches and inspires
April 22, 2022
TOUCHED BY LYME: Remembering a Lyme disease pioneer
April 11, 2022
TOUCHED BY LYME: “Ehrlichia,” Rhapsody in Discomfort #6
April 3, 2022
TOUCHED BY LYME: “Now is not the time for the state to cheap on tick-borne illnesses”
March 25, 2022
TOUCHED BY LYME: New program helps pay for internet access
March 22, 2022
TOUCHED BY LYME: Rehabilitating your Lyme-impaired vision
March 14, 2022
TOUCHED BY LYME: Repeating incorrect information doesn’t cause it to become correct
March 7, 2022
TOUCHED BY LYME: Horowitz responds to the “old persistence debate”
March 4, 2022
TOUCHED BY LYME: Highs and lows at TBD Working Group meetings
February 25, 2022
TOUCHED BY LYME: Advocates from 45 states seek more Lyme funding
February 21, 2022
TOUCHED BY LYME: “My Promise to Alex” –a memoir and a call to arms
February 14, 2022
TOUCHED BY LYME: When parents are unjustly accused of harming their sick child
February 3, 2022
TOUCHED BY LYME: Register for Lyme Fly-in by February 10
January 27, 2022
TOUCHED BY LYME: Who will represent YOUR state? Maybe you?
January 7, 2022
TOUCHED BY LYME: The blogs you cared about most in 2021
January 3, 2022
TOUCHED BY LYME: 2022’s virtual Lyme Fly-In is February 22-23
December 1, 2021
TOUCHED BY LYME: “Deep Places” explores one man’s Lyme fight
November 22, 2021
TOUCHED BY LYME: Lyme film “Your Labs are Normal” now on Vimeo
November 4, 2021
TOUCHED BY LYME: Helping families with Lyme re-capture their joy
October 28, 2021
TOUCHED BY LYME: Raising awareness, one car magnet at a time
October 27, 2021
TOUCHED BY LYME: Helping the brain heal from Lyme and mold
October 22, 2021
TOUCHED BY LYME: The promise of a targeted drug for Lyme disease
October 19, 2021
TOUCHED BY LYME: Lyme film premiere postponed for a good reason
October 6, 2021
TOUCHED BY LYME: Of Alzheimer’s, Lyme, and family caught in the squeeze
October 4, 2021
TOUCHED BY LYME: Advocacy webinar Oct. 28—register now
September 29, 2021
TOUCHED BY LYME: Apply for financial assistance for Lyme treatment
September 28, 2021
TOUCHED BY LYME: What? Only 7 cases of Lyme in Massachusetts?
September 17, 2021
TOUCHED BY LYME: When Crossfit crosses paths with Lyme disease
September 8, 2021
TOUCHED BY LYME: Revisiting an anthropologist’s view of Lyme-related suicide
September 2, 2021
TOUCHED BY LYME: Resources to help figure out your next move
August 30, 2021
TOUCHED BY LYME: The poignant Lyme story behind Messy Buns Bakery
August 26, 2021
TOUCHED BY LYME: Let the gaslighting and stigmatization stop here
August 18, 2021
TOUCHED BY LYME: Why wait for 3 negative COVID tests to consider Lyme disease?
August 13, 2021
TOUCHED BY LYME: The thorny question of (no) insurance coverage for Lyme
August 12, 2021
TOUCHED BY LYME: With so much to do, how do advocates keep going?
August 4, 2021
TOUCHED BY LYME: How Lyme disease can affect your vision
July 15, 2021
TOUCHED BY LYME: Congress shows interest in Lyme disease research
May 28, 2021
TOUCHED BY LYME: Special education protections for kids with Lyme
May 27, 2021
TOUCHED BY LYME: Michigan’s tick population is surging
May 24, 2021
TOUCHED BY LYME: CDC serves up same old wrongheaded Lyme advice
May 11, 2021
TOUCHED BY LYME: “Main St. Living” spreads the word about Lyme disease
May 5, 2021
TOUCHED BY LYME: “The Red Ring” takes a global look at Lyme disease
April 26, 2021
TOUCHED BY LYME: “A very funny play about Lyme disease”
April 22, 2021
TOUCHED BY LYME: How to add a Lyme awareness frame on Facebook
April 20, 2021
TOUCHED BY LYME: Easy way to ask your Representative for Lyme funding
April 9, 2021
TOUCHED BY LYME: Long-haul COVID “isn’t as unique as we thought”
March 29, 2021
TOUCHED BY LYME: If your teen has mental health problems, read this
March 15, 2021
TOUCHED BY LYME: Ukulele brings joy and healing, even when bedridden
March 3, 2021
TOUCHED BY LYME: When Lyme disease is mistaken for child abuse
March 1, 2021
TOUCHED BY LYME: Lyme video–“One Little Bite”–packs a big wallop
February 25, 2021
TOUCHED BY LYME: Advocates zoom with Congress for more Lyme funding
February 17, 2021
TOUCHED BY LYME: Lyme information for US military is mission critical
February 3, 2021
TOUCHED BY LYME: NY Times op-ed features the Lyme+ book “Chronic”
February 2, 2021
TOUCHED BY LYME: 31 states represented so far. What about YOURS?
February 1, 2021
TOUCHED BY LYME: Read excerpt of “Chronic,” long-awaited book by Phillips and Parish
January 25, 2021
TOUCHED BY LYME: “Lyme complex” triggers pandemonium in immune system
January 22, 2021
TOUCHED BY LYME: Let’s get more funding. Sign up for virtual “Lyme Fly-In” now
January 18, 2021
TOUCHED BY LYME: Tick bite on groin is no laughing matter
January 14, 2021
TOUCHED BY LYME: CDC’s Lyme numbers finally inching towards reality
December 22, 2020
TOUCHED BY LYME: Max Fierek fights to ride–and spread Lyme awareness
December 13, 2020
TOUCHED BY LYME: Feeling less “alone, despairing and hopeless”
December 4, 2020
TOUCHED BY LYME: Working Group holds final meeting. What’s next?
November 24, 2020
TOUCHED BY LYME: Jane Barrows keeps fighting for Lyme patients in RI
November 20, 2020
TOUCHED BY LYME: Contentious TBDWG vote delivers a win for patients
November 17, 2020
TOUCHED BY LYME: Their message is clear. Patients want to get well.
October 30, 2020
TOUCHED BY LYME: Shapiro and Walker tried having it both ways. It didn’t work.
October 27, 2020
TOUCHED BY LYME: What’s true Lyme patient representation?
October 22, 2020
TOUCHED BY LYME: Why what’s on a death certificate matters so much
October 19, 2020
TOUCHED BY LYME: Launching a “moonshot” to cure Lyme by 2030
October 17, 2020
TOUCHED BY LYME: My conversation with “Lyme Time Podcast with Ali”
October 15, 2020
TOUCHED BY LYME: Legislative update and a Lyme “moonshot”
September 29, 2020
TOUCHED BY LYME: Resources to get you going in the right direction
September 25, 2020
TOUCHED BY LYME: Walker & Shapiro fail to change report’s Chapter 7
September 17, 2020
TOUCHED BY LYME: Will Working Group acknowledge patient voices?
August 27, 2020
TOUCHED BY LYME: Can we cure Lyme disease…or what?
August 7, 2020
TOUCHED BY LYME: “Axel and the True Story of an Imaginary Illness”
July 31, 2020
TOUCHED BY LYME: House approves increased funding for Lyme disease
July 29, 2020
TOUCHED BY LYME: Lasting musical tribute to Neil Spector’s legacy
July 26, 2020
TOUCHED BY LYME: Real-world patient data can help find a cure
July 22, 2020
TOUCHED BY LYME: Townsend Letter focuses on Lyme, mold, & COVID
July 17, 2020
TOUCHED BY LYME: WNBA says COVID no risk to player with Lyme disease
July 16, 2020
TOUCHED BY LYME: Working Group cuts public comment in half. Why?
July 10, 2020
TOUCHED BY LYME: TBD Working Group and FACA’s open meeting rules
July 1, 2020
TOUCHED BY LYME: New Hampshire Lyme insurance bill heads to governor
June 26, 2020
TOUCHED BY LYME: How medical education misses the (Lyme) bull’s-eye
June 19, 2020
TOUCHED BY LYME: Community grieves loss of Dr. Neil Spector
June 12, 2020
TOUCHED BY LYME: “Like the devil was inside me,” says comedian of Lyme disease
June 1, 2020
TOUCHED BY LYME: Treating psychiatric Lyme symptoms with disulfiram
May 26, 2020
TOUCHED BY LYME: The healing power of “realistic, practical hope”
May 21, 2020
TOUCHED BY LYME: Coronavirus in NYC, both with and without Lyme disease
May 20, 2020
TOUCHED BY LYME: Sharing Alex’s Lyme legacy with 1000s of Girl Scouts
May 18, 2020
TOUCHED BY LYME: Self-isolation, “COVID toes” and projectile vomiting
May 9, 2020
TOUCHED BY LYME: MyLymeData is something you can do from home
May 8, 2020
TOUCHED BY LYME: Persistent Lyme a sticking point for TBD Working Group
May 1, 2020
TOUCHED BY LYME: Post a #FaceMaskSelfie during #CoronaWithLyme month
April 27, 2020
TOUCHED BY LYME: Bizarre happenings at the TBD Working Group
April 22, 2020
TOUCHED BY LYME: Horowitz publishes on COVID-19 and glutathione
April 15, 2020
TOUCHED BY LYME: Coronavirus suggestions for mold patients
April 8, 2020
TOUCHED BY LYME: Helping teens stay sane while quarantining
April 6, 2020
TOUCHED BY LYME: Recovering COVID patient & Dr. Horowitz tell their story
March 16, 2020
TOUCHED BY LYME: Let’s call it physical—not social—distancing, okay?
March 13, 2020
TOUCHED BY LYME: Lyme awareness in the time of coronavirus
March 5, 2020
TOUCHED BY LYME: Proxy votes violate spirit of TBD Working Group
February 17, 2020
TOUCHED BY LYME: Flying in to Washington to lobby for increased Lyme funding
February 11, 2020
TOUCHED BY LYME: “The only thing to do is push through” says Justin Bieber
February 7, 2020
TOUCHED BY LYME: CDC allows “possibility” of mother-fetus Lyme transmission
February 5, 2020
TOUCHED BY LYME: CDC’s map gives wrong impression. There are no “safe” states.
January 24, 2020
TOUCHED BY LYME: Vote now to recognize “Lyme and Reason” for excellence
January 17, 2020
TOUCHED BY LYME: “Lyme Action Fly-In” planned for Washington DC
January 10, 2020
TOUCHED BY LYME: Justin Bieber’s Lyme disease story lights up the internet
January 8, 2020
TOUCHED BY LYME: “Bitten” makes many “Best of 2019” book lists
January 3, 2020
TOUCHED BY LYME: Senators ask NIAID’s Fauci pointed questions about Lyme
December 17, 2019
TOUCHED BY LYME: An “evidence-based” definition of chronic Lyme disease
December 10, 2019
TOUCHED BY LYME: Lyme insurance claims make huge jump in US
December 3, 2019
TOUCHED BY LYME: Latest in anti-IDSA/insurers lawsuit: Kaiser settles.
November 27, 2019
TOUCHED BY LYME: Thanksgiving in the Lyme World, 2019
November 10, 2019
TOUCHED BY LYME: “Chronic Lyme disease steals life.”
October 28, 2019
TOUCHED BY LYME: Moorcroft headlines Central Mass Lyme Conference
October 24, 2019
TOUCHED BY LYME: Important journal articles you won’t want to miss
October 2, 2019
TOUCHED BY LYME: BBC radio drama takes on Lyme disease
October 1, 2019
TOUCHED BY LYME: “Lyme Brain” – The Impact of Lyme Disease on Your Brain
September 16, 2019
TOUCHED BY LYME: Give us timely information on Working Group
September 10, 2019
TOUCHED BY LYME: Ignoring psychiatric Lyme disease at our peril
August 23, 2019
TOUCHED BY LYME: Lyme patient/physician coalition goes international
August 19, 2019
TOUCHED BY LYME: Finally, easier way to comment on IDSA guidelines
August 15, 2019
TOUCHED BY LYME: IDSA guidelines deny Lyme diagnosis to most of the USA
August 10, 2019
TOUCHED BY LYME: IDSA extends comment period and allows downloads
August 8, 2019
TOUCHED BY LYME: New source of financial aid for Lyme patients
August 6, 2019
TOUCHED BY LYME: Aug.10 deadline for IDSA comments; archive them, too
July 19, 2019
TOUCHED BY LYME: IDSA’s insincere request for guidelines feedback
June 28, 2019
TOUCHED BY LYME: Singing from the IDSA Lyme hymnal
June 12, 2019
TOUCHED BY LYME: Working group’s abrupt shift excludes Lyme patients
May 29, 2019
TOUCHED BY LYME: Working Group weirdness. What gives?
May 13, 2019
TOUCHED BY LYME: Is Lyme disease a bioweapons experiment gone bad?
May 6, 2019
TOUCHED BY LYME: LymeHope’s poll about mother-baby transmission
April 16, 2019
TOUCHED BY LYME: “Empowering the patient” in Maine, April 26
March 14, 2019
TOUCHED BY LYME: Equal sequencing for West Coast ticks?
March 8, 2019
TOUCHED BY LYME: Baseball’s Tom Seaver diagnosed with dementia
March 1, 2019
TOUCHED BY LYME: Information hub for anti-IDSA lawsuit
February 21, 2019
TOUCHED BY LYME: When the “perfect storm” is too much to bear
February 15, 2019
TOUCHED BY LYME: Avril’s album brings blizzard of coverage to Lyme disease
February 5, 2019
TOUCHED BY LYME: Avril’s “Warrior” to be Lyme community’s anthem?
February 1, 2019
TOUCHED BY LYME: Strang’s strange anti-Lyme retweet
January 18, 2019
TOUCHED BY LYME: 10 years of Lyme progress, one blog at a time
January 7, 2019
TOUCHED BY LYME: Happy update on Lyme spokesperson Landau
December 17, 2018
TOUCHED BY LYME: Lyme spokesperson Landau to undergo heart surgery
December 8, 2018
TOUCHED BY LYME: The healing power of gratitude ornaments
December 7, 2018
TOUCHED BY LYME: “Not Lyme disease”–or misdiagnosis by geography?
November 26, 2018
TOUCHED BY LYME: A look at Lyme Mexico and plasmapheresis
November 22, 2018
TOUCHED BY LYME: Grandma’s advice on getting through tough times
November 19, 2018
TOUCHED BY LYME: Thanksgiving in the Lyme world, 2018
November 13, 2018
TOUCHED BY LYME: Canadian Lyme lawsuit goes to trial Nov. 26
October 22, 2018
Private: TOUCHED BY LYME: Strong connection between Lyme disease and MS
October 18, 2018
TOUCHED BY LYME: Financial assistance for your child with Lyme
October 12, 2018
TOUCHED BY LYME: IDSA admits “shortcomings” in Lyme disease testing
October 8, 2018
TOUCHED BY LYME: Recognizing maternal-fetal transmission of Lyme disease
September 28, 2018
TOUCHED BY LYME: Searing Lyme docudrama in PA on Oct. 13
September 27, 2018
TOUCHED BY LYME: Resources to help you hit the ground running
August 23, 2018
TOUCHED BY LYME: Caring for a child with Lyme disease
August 16, 2018
TOUCHED BY LYME: Nelson Family Project spreads awareness of Lyme disease in Maine
August 14, 2018
TOUCHED BY LYME: The NY Times and the question of a Lyme vaccine
July 20, 2018
TOUCHED BY LYME: Why we care so strongly about a potential vaccine
July 11, 2018
TOUCHED BY LYME: “Powerful” patients axed Lyme vaccine? Baloney!
July 6, 2018
TOUCHED BY LYME: “Non-relevant” tick bite puts child in hospital
July 3, 2018
TOUCHED BY LYME: Using high level math to fight Lyme disease
June 23, 2018
TOUCHED BY LYME: Say what? California fifth in nation for Lyme insurance claims?
June 5, 2018
TOUCHED BY LYME: “Dropping rhymes” to target Lyme disease
May 30, 2018
TOUCHED BY LYME: No Lyme in the South? Guess again.
May 29, 2018
TOUCHED BY LYME: 4th year of “Take a bite out of Lyme” campaign
May 24, 2018
TOUCHED BY LYME: Letterman gives a tick to Seth Meyers on TV
May 14, 2018
TOUCHED BY LYME: “Rehashing” LYMErix vaccine? Yes, let’s do that
May 5, 2018
TOUCHED BY LYME: New CDC stance on Lyme disease?
April 23, 2018
TOUCHED BY LYME: Guidelines clearinghouse to shut down in July
April 14, 2018
TOUCHED BY LYME: Why you should read (and review) the new Lyme book
April 9, 2018
TOUCHED BY LYME: Pfeiffer electrifies at MyLymeData2018…and online
March 12, 2018
TOUCHED BY LYME: Book calls epidemic “global and dangerous”
February 23, 2018
TOUCHED BY LYME: Women and Lyme disease. What’s going on?
February 6, 2018
TOUCHED BY LYME: Book’s “strong case” against Lyme status quo
December 18, 2017
TOUCHED BY LYME: Books for your own shelf, or for gifting to others
December 14, 2017
TOUCHED BY LYME: Decorated female Air Force pilot now “unfit for duty”
December 7, 2017
TOUCHED BY LYME: More about CDC website’s deleted references to IDSA
December 4, 2017
TOUCHED BY LYME: Update of our protest about Dr. Gary Wormser
December 2, 2017
CDC website removes link to IDSA guidelines. Just lipstick on a pig?
November 29, 2017
TOUCHED BY LYME: The healing power of gratitude ornaments
November 20, 2017
TOUCHED BY LYME: An intriguing short film about Lyme disease
November 2, 2017
TOUCHED BY LYME: Requiring CDC to use its Lyme funding effectively?
October 30, 2017
TOUCHED BY LYME: Connecting the dots of Yolanda’s Lyme experience
October 12, 2017
TOUCHED BY LYME: Misinterpreting the word “occur” on the CDC website
September 12, 2017
TOUCHED BY LYME: Ora, the girl with the mystery illness
September 5, 2017
TOUCHED BY LYME: When Lyme disease isn’t caught early
August 31, 2017
TOUCHED BY LYME: Facebook posts affect Lyme disease lawsuit
August 29, 2017
TOUCHED BY LYME: Shining a light for Lyme at Maine’s Union Fair
August 27, 2017
Private: TOUCHED BY LYME: How to recover from “Lyme brain” ORIGINAL
August 25, 2017
TOUCHED BY LYME: Lyme moms meet with Canadian Health Minister
August 17, 2017
TOUCHED BY LYME: Winning video links Lyme to climate change
August 16, 2017
TOUCHED BY LYME: Mobile game helps teens discover resilience
August 7, 2017
TOUCHED BY LYME: California Lyme cases “don’t get no respect”
July 25, 2017
TOUCHED BY LYME: Lyme moms to meet with Canadian Health Minister
July 14, 2017
TOUCHED BY LYME: Filling library shelves with Lyme disease books
June 29, 2017
TOUCHED BY LYME: British Lord discusses Lyme in “Queen’s Speech” debate
June 16, 2017
TOUCHED BY LYME: CDC ignores ethics, attacks “chronic Lyme”
June 9, 2017
TOUCHED BY LYME: The world’s oldest Lyme disease patient
May 15, 2017
TOUCHED BY LYME: A close look at six Lyme-related infections
May 12, 2017
TOUCHED BY LYME: Don’t miss this terrific Lyme reporting
May 11, 2017
TOUCHED BY LYME: 8th graders win “Be Tick Free” video contest
May 9, 2017
TOUCHED BY LYME: Remembering Wisconsin’s beloved Lyme doctor
April 14, 2017
TOUCHED BY LYME: A teenager seeks answers to a lifetime of pain
April 11, 2017
TOUCHED BY LYME: Canadian Lyme moms carry petitions to Ottawa
April 11, 2017
TOUCHED BY LYME: A mobile game for chronically ill teens
March 13, 2017
TOUCHED BY LYME: Hikers should think twice before sitting on rocks
March 3, 2017
TOUCHED BY LYME: “Little Things” packs powerful punch
March 1, 2017
TOUCHED BY LYME: Arkansas takes baby steps to recognize Lyme disease
February 15, 2017
TOUCHED BY LYME: I’ll be speaking in Arizona Feb 25
January 30, 2017
TOUCHED BY LYME: Lyme disability ruling is a positive step
January 19, 2017
TOUCHED BY LYME: It’s time for me to stop joking about my health
January 6, 2017
TOUCHED BY LYME: Threading your way through Morgellons disease
December 20, 2016
TOUCHED BY LYME: When you realize that yes, recovery is possible
December 5, 2016
TOUCHED BY LYME: The healing power of gratitude ornaments
December 1, 2016
TOUCHED BY LYME: Questions about Lyme in #CuresNow bill
November 21, 2016
Thanksgiving in the Lyme world, 2016
November 16, 2016
TOUCHED BY LYME: Keeping records for those who have died
October 31, 2016
TOUCHED BY LYME: Songwriter no longer “Paralyzed” by Lyme
October 7, 2016
TOUCHED BY LYME: When are Lyme-like symptoms actually caused by B. miyamotoi?
September 30, 2016
TOUCHED BY LYME: “Dear Borrelia, let me win some battles”
September 26, 2016
TOUCHED BY LYME: No Lyme in Arkansas? Baloney!
September 11, 2016
TOUCHED BY LYME: Financial help for Connecticut Lyme patients
August 23, 2016
TOUCHED BY LYME: Yes, Lyme is here; yes, learn to protect yourself and your family
August 22, 2016
TOUCHED BY LYME: Two Olympians, different outcomes
August 19, 2016
TOUCHED BY LYME: Successful Texas Lyme Vigil in Dallas
August 15, 2016
TOUCHED BY LYME: “Lyme Ninja Radio” informs and inspires
August 8, 2016
TOUCHED BY LYME: Mystery illness turns out to be Bartonella
July 22, 2016
TOUCHED BY LYME: The 17th nail and what families need to survive it
July 14, 2016
TOUCHED BY LYME: The vexations of Lyme, mold and doctor appointments
July 12, 2016
TOUCHED BY LYME: When Lyme makes your body attack your brain
July 11, 2016
TOUCHED BY LYME: Teenager photographs beauty to transcend illness
June 27, 2016
TOUCHED BY LYME: Of Lyme, insomnia, super-heroes…and bacon
June 23, 2016
TOUCHED BY LYME: Sixth day of hunger strike by Frenchman with chronic Lyme
June 21, 2016
TOUCHED BY LYME: A hunger strike for “le droit de guerir”—the right to be cured
June 20, 2016
TOUCHED BY LYME: High school class nets $2200 for Lyme research
June 10, 2016
TOUCHED BY LYME: “Why so long to diagnose?” Why, indeed?
June 7, 2016
TOUCHED BY LYME: A mom appreciates Ally Hilfiger for “getting it”
June 6, 2016
TOUCHED BY LYME: Ally Hilfiger’s stolen childhood
May 12, 2016
TOUCHED BY LYME: Docu-drama rings alarm about Lyme epidemic
May 8, 2016
TOUCHED BY LYME: Leprosy drug shows promise for Lyme treatment
May 1, 2016
TOUCHED BY LYME: Spreading the word about Lyme disease in Maine
April 25, 2016
TOUCHED BY LYME: First-place award for our Lyme book
April 22, 2016
TOUCHED BY LYME: Discussing my book at upcoming Lyme conferences
April 5, 2016
TOUCHED BY LYME: “Even good girls can get deathly ill”
April 1, 2016
TOUCHED BY LYME: Media drinks kool-aid on Lyme study
March 29, 2016
TOUCHED BY LYME: Jesse Colin Young says life with Lyme “cuts like a knife”
March 15, 2016
TOUCHED BY LYME: Girl’s Lyme “dream” goes viral
March 14, 2016
TOUCHED BY LYME: A quick introduction to Lyme disease
February 23, 2016
TOUCHED BY LYME: How to heal yourself when no one else can
February 17, 2016
TOUCHED BY LYME: “IDSA guidelines, will you please go now!”
February 9, 2016
TOUCHED BY LYME: “Go for the openings!”
February 4, 2016
TOUCHED BY LYME: The adventures of getting a PICC line
December 30, 2015
TOUCHED BY LYME: Huffington Post reviews my Lyme disease book
December 22, 2015
TOUCHED BY LYME: Jesse Colin Young sings of “Lymelife”
December 10, 2015
TOUCHED BY LYME: Is it Lyme or “school avoidance”?
November 30, 2015
TOUCHED BY LYME: NEA’s “teachable moment” ends in apology–sort of
November 30, 2015
TOUCHED BY LYME: “Chronically tarded and medically annoying”? Really?
November 26, 2015
Thanksgiving in the Lyme world, 2015
November 23, 2015
Lyme disease in Hawaii: one patient’s story
November 9, 2015
TOUCHED BY LYME: Compelling Lyme memoir now an audio book
November 4, 2015
TOUCHED BY LYME: Being your own superhero
October 11, 2015
TOUCHED BY LYME: Yes, the IDSA noticed us in San Diego
September 29, 2015
TOUCHED BY LYME: “Most serious undiagnosed health threat in existence”
September 28, 2015
TOUCHED BY LYME: Lyme cyclist to reach Pacific October 3
September 24, 2015
TOUCHED BY LYME: Lyme Quilt coming to San Diego protest
September 14, 2015
When Your Child Has Lyme disease: A Parent’s Survival Guide
September 8, 2015
Suffering the Silence: Chronic Lyme Disease in an Age of Denial
September 5, 2015
TOUCHED BY LYME: Six apps to simplify life with Lyme
August 28, 2015
TOUCHED BY LYME: My letter published in San Francisco Chronicle
August 28, 2015
TOUCHED BY LYME: Letter to her pre-illness self
August 21, 2015
TOUCHED BY LYME: Sometimes “tick panic” is a good thing
August 13, 2015
TOUCHED BY LYME: CDC ups cases to 329,000; some docs push back
August 11, 2015
TOUCHED BY LYME: Protesting IDSA in San Diego, Oct. 9-10
July 27, 2015
The basics about protecting yourself from ticks
July 21, 2015
“This picture shouldn’t even be a thing”
May 29, 2015
Helpful Lyme disease information links
May 22, 2015
Book review: “Cannabis for Lyme disease and related conditions”
May 20, 2015
A life on pause: when Lyme steals everything
April 30, 2015
“Dear Abby” writes about Lyme disease
April 27, 2015
“Two steps forward and one step back is progress.”
April 7, 2015
TOUCHED BY LYME: An easier way to comment on IDSA's Lyme review
April 6, 2015
TOUCHED BY LYME: One patient’s comments to IDSA
March 30, 2015
TOUCHED BY LYME: What a real "patient representative" actually looks like
March 30, 2015
TOUCHED BY LYME: The World According to Harrison
March 17, 2015
TOUCHED BY LYME: When Lyme disease affects the heart
February 23, 2015
New support group for parents of kids with Lyme
February 4, 2015
Connecting with other "teen Lyme-a-beans"
January 19, 2015
Mother's "Lyme rage" over child's illness propels her to seek answers
January 10, 2015
TOUCHED BY LYME: CDC fires another salvo against "chronic Lyme"
December 2, 2014
TOUCHED BY LYME: Rising musical star gives Dec. 4 “Stageit” concert for Lyme
November 24, 2014
Helping chronically ill kids dig deep for healing
November 18, 2014
Another Lyme voice falls silent
November 13, 2014
TOUCHED BY LYME: Finding what it takes to keep you functional
November 12, 2014
Send Willy Burgdorfer a message of gratitude
November 10, 2014
“Most misunderstood disease since AIDS”
October 8, 2014
TOUCHED BY LYME: A new way to "crowdfund" your medical bills
September 30, 2014
When family members don’t believe you have Lyme
September 26, 2014
“I am not alone in this hellish journey”
September 18, 2014
"Change will not happen as long as Lymies are invisible"
September 16, 2014
Washington Post writer's question about Lyme disease
September 10, 2014
Telling the stories of people with Lyme disease
September 2, 2014
Sequel to Under Our Skin is essential viewing
August 18, 2014
Keeping clear water in your metaphorical tub
August 13, 2014
So what does it take to get a good night’s sleep?
August 6, 2014
No "magic bullet" for Lyme, but lots of useful ideas
August 5, 2014
"Lyme? At least it isn’t cancer"
August 2, 2014
Perreault Magazine features article on Lyme disease
July 30, 2014
Dr. Jones called both Great Satan and Mother Theresa
July 11, 2014
Jesse Colin Young “got brain back” after Lyme treatment
June 11, 2014
Bayer Animal Health looks at Lyme disease
June 9, 2014
New Lyme book offers "science plus compassion"
June 2, 2014
Private: Like beating my head against a fog wall
May 21, 2014
"Lyme awareness" must include "self-awareness"
May 12, 2014
Managing chronic Lyme? There's an app for that….
May 8, 2014
“Not your average illness memoir”? That’s an understatement.
May 2, 2014
"MC Herx" and the "Chronicles of Borrelia"
April 28, 2014
TOUCHED BY LYME: How does your chronically ill child or teen spend the day?
April 23, 2014
TOUCHED BY LYME: One woman’s story of healing from chronic Lyme
April 16, 2014
TOUCHED BY LYME: When Lyme disease steals your voice—literally
April 2, 2014
Known tick bite, no symptoms, what to do?
March 29, 2014
TOUCHED BY LYME: Understanding Lyme disease through art
March 19, 2014
TOUCHED BY LYME: Lyme disease on the Appalachian Trail
March 11, 2014
TOUCHED BY LYME: Let Justina go home with her parents—now!
February 26, 2014
TOUCHED BY LYME: What does the CDC’s 300,000 number really mean?
February 6, 2014
TOUCHED BY LYME: How the “pain scale” inflicts even more pain on children
February 4, 2014
TOUCHED BY LYME: Tax strategies for parents of kids with special needs
January 20, 2014
Yolanda Foster tops 5-year Lyme hit parade
January 15, 2014
TOUCHED BY LYME: “Why I stopped hiding my illness”
January 10, 2014
TOUCHED BY LYME: Financial destruction from Lyme disease
January 9, 2014
TOUCHED BY LYME: Just resolving to "get well" doesn't cut it. What does?
December 12, 2013
TOUCHED BY LYME: When punk rock collides with Lyme disease
December 10, 2013
TOUCHED BY LYME: How to set up a Lyme support group
December 9, 2013
TOUCHED BY LYME: Taking to YouTube–and knitting needles–in search of answers
December 4, 2013
TOUCHED BY LYME: How the Lyme media landscape changed significantly in 2013
November 18, 2013
TOUCHED BY LYME: Her disability benefits for Lyme finally came through
November 11, 2013
TOUCHED BY LYME: Need a crash course in Lyme disease? Start here.
October 30, 2013
TOUCHED BY LYME: Microscope you helped buy is now on the job
October 28, 2013
TOUCHED BY LYME: Horowitz, Sapi, & live TV highlight San Diego Lymewalk
October 28, 2013
TOUCHED BY LYME: How iphones can mess with your head
October 14, 2013
BOOK REVIEW: “Why Can’t I get Better? Solving the Mystery of Lyme and Chronic Disease”
October 10, 2013
TOUCHED BY LYME: Hip hop artist channels Lyme journey into rap song
October 9, 2013
TOUCHED BY LYME: Re-cap of San Francisco IDSA protest
October 1, 2013
TOUCHED BY LYME: What's your sign's message to IDSA?
September 27, 2013
Teen's death a wake-up call for Lyme disease?
September 27, 2013
TOUCHED BY LYME: When "Lyme Loonies" is a badge of honor
September 2, 2013
Private: TOUCHED BY LYME: Katie Couric is asking for your Lyme stories
September 1, 2013
TOUCHED BY LYME: Hiking the Appalachian Trail for Lyme awareness
August 28, 2013
TOUCHED BY LYME: Saving money on Lyme-related lab tests
August 21, 2013
TOUCHED BY LYME: "300,000" number catches media's eye
August 19, 2013
TOUCHED BY LYME: New CDC Lyme figures still ignore important issues
August 16, 2013
TOUCHED BY LYME: Latest on Dr. Charles Ray Jones
August 14, 2013
TOUCHED BY LYME: Rash of Lyme stories in national media
August 8, 2013
TOUCHED BY LYME: In latest "Yellow Book," CDC still minimizes Lyme disease risk
August 3, 2013
TOUCHED BY LYME: Can you join us in San Francisco? How about San Diego?
August 1, 2013
TOUCHED BY LYME: The difference between "normal tired" and "too tired to breathe"
July 25, 2013
TOUCHED BY LYME: Unfortunate news for young MA tick researcher
July 25, 2013
TOUCHED BY LYME: Bracelets for Lyme disease
July 4, 2013
TOUCHED BY LYME: Making Lyme-Aid
June 28, 2013
TOUCHED BY LYME: Media Coverage Response
June 21, 2013
TOUCHED BY LYME: Things gained, things lost, things learned from Lyme disease
June 20, 2013
TOUCHED BY LYME: KC's Kathy White, telling it like it is to the CDC
June 17, 2013
TOUCHED BY LYME: Same-old, same-old from the CDC
June 13, 2013
TOUCHED BY LYME: Taking back the Lyme research agenda, one project at a time
May 28, 2013
TOUCHED BY LYME: Got MALC? Try this interactive tick & Lyme map
May 20, 2013
TOUCHED BY LYME: The "all-in-your-head" write-off for Lyme disease
May 18, 2013
TOUCHED BY LYME: How to protect yourself in tick territory
May 17, 2013
TOUCHED BY LYME: Yolanda Foster's Lyme update on Facebook
May 7, 2013
TOUCHED BY LYME: Ski champ shares her “LymeLight” in new film
May 6, 2013
TOUCHED BY LYME: No Lyme in your zip code–revisited
April 28, 2013
TOUCHED BY LYME: Tick-borne illnesses in Finland
April 23, 2013
TOUCHED BY LYME: Protect your children from tick-borne diseases
April 22, 2013
TOUCHED BY LYME: Apples top this year's "Dirty Dozen" food list
April 18, 2013
TOUCHED BY LYME: Lyme disease information list
April 3, 2013
TOUCHED BY LYME: New kids' book about ticks and Lyme disease
April 1, 2013
TOUCHED BY LYME: Recovery is a long, slow, balancing act
March 29, 2013
TOUCHED BY LYME: NPR’s “Unfit for Work” has troubling implications for those disabled by Lyme disease
March 28, 2013
TOUCHED BY LYME: “Kingdom of the sick” is a stark place, indeed
March 16, 2013
TOUCHED BY LYME: Arguing "burden of proof" for Dr. Charles Ray Jones
March 12, 2013
TOUCHED BY LYME: Lyme made her "a shell of the woman I used to be"
March 11, 2013
TOUCHED BY LYME: “When the story of Lyme disease is written, it will be the story of patients standing up and being heard."
March 8, 2013
TOUCHED BY LYME: Doxycycline shortage causes prices to skyrocket
March 8, 2013
TOUCHED BY LYME: Dr. Jones goes to CT Supreme Court on March 14
February 25, 2013
TOUCHED BY LYME: Don't judge a book by the length of a cab ride
February 20, 2013
TOUCHED BY LYME: Newly crowned Miss Solano teaches Lyme awareness
February 18, 2013
TOUCHED BY LYME: Another fallen Lyme warrior
February 11, 2013
TOUCHED BY LYME: "When life kicks your ass, kick back"
February 4, 2013
TOUCHED BY LYME: Hot tips on how to rid your clothing of ticks
February 3, 2013
TOUCHED BY LYME: When it's time to look beyond Lyme disease
January 24, 2013
TOUCHED BY LYME: The CDC is…a puzzlement!
January 21, 2013
TOUCHED BY LYME: Squeaking under the wire for White House petition
January 20, 2013
TOUCHED BY LYME: Auburn Journal editorializes about Lyme disease
January 17, 2013
TOUCHED BY LYME: Physical illness can now be labeled a mental disorder
January 16, 2013
TOUCHED BY LYME: Katie Couric asks "What was your worst health scare?"
January 9, 2013
TOUCHED BY LYME: When statistics get in the way of the real story
January 7, 2013
TOUCHED BY LYME: Life lessons from a Connecticut turtle
January 2, 2013
NO SMALL THING: Could Pulitzer be in store for newspaper Lyme series?
December 27, 2012
TOUCHED BY LYME: Physical Illnesses May Soon Be Labeled “Mental Disorders”
December 23, 2012
TOUCHED BY LYME: When poor health and the holidays collide
December 11, 2012
TOUCHED BY LYME: Running on empty
December 6, 2012
TOUCHED BY LYME: Updated Lyme disease information list
December 5, 2012
BOOK REVIEW: The Beginner’s Guide to Lyme Disease
November 30, 2012
TOUCHED BY LYME: When you can't afford to pay for Lyme medications
November 24, 2012
TOUCHED BY LYME: Another Blow to those with Chronic Fatigue Syndrome
November 4, 2012
TOUCHED BY LYME: When "caboose" doctors go the extra mile
November 3, 2012
TOUCHED BY LYME: Respond now to "Healthy People" initiative
November 3, 2012
TOUCHED BY LYME: Reporting in from ILADS conference
October 24, 2012
TOUCHED BY LYME: Newspaper demonstrates Lyme is "no small thing"
October 22, 2012
TOUCHED BY LYME: Here's video from San Diego's Lyme protest
October 22, 2012
TOUCHED BY LYME: Re-cap of San Diego IDSA Lyme protest
October 17, 2012
TOUCHED BY LYME: "Advancing science, improving care"? I don’t think so, IDSA.
October 16, 2012
TOUCHED BY LYME: "Chronically ill friends–I know you. I believe you. I understand you."
October 9, 2012
TOUCHED BY LYME: Former military wife now a Lyme warrior
October 2, 2012
TOUCHED BY LYME: Lyme Disease and Romney’s Microtargeting Strategy
October 1, 2012
TOUCHED BY LYME: Romney’s mailer tangles Lyme disease with partisan politics
September 23, 2012
TOUCHED BY LYME: Coming back to life after Lyme disease
September 12, 2012
TOUCHED BY LYME: Can you get disability benefits for Lyme disease?
September 4, 2012
TOUCHED BY LYME: Search-and-rescue teams may be at high risk for tick diseases
August 27, 2012
TOUCHED BY LYME: Returning to the scene of the crime
August 23, 2012
TOUCHED BY LYME: A "Manhattan project" for Lyme disease?
August 23, 2012
TOUCHED BY LYME: Facebook chat with NY Lyme reporter tonight
August 9, 2012
TOUCHED BY LYME: Massachusetts activist slams back at Lyme disease
August 3, 2012
TOUCHED BY LYME: CDC's "Lyme stories" leave out the big picture
August 1, 2012
TOUCHED BY LYME: A second helping of "what not to say" to those sick and in pain
July 29, 2012
TOUCHED BY LYME: "I know what Lyme has done to you and how narrowly you have survived thus far."
July 9, 2012
TOUCHED BY LYME: WBUR's Lyme series is a mixed bag
July 5, 2012
TOUCHED BY LYME: What the chronically ill DO want to hear you say
June 29, 2012
TOUCHED BY LYME: The "take-aways" from WBUR's Lyme panel
June 27, 2012
TOUCHED BY LYME: What not to say when someone is sick or in pain
June 20, 2012
TOUCHED BY LYME: "Babelicious" and other household names
June 13, 2012
TOUCHED BY LYME: No Lyme in Kentucky? Says who?
June 11, 2012
TOUCHED BY LYME: A beauty contest for biofilms?
June 4, 2012
TOUCHED BY LYME: Waiting for life's red lights to turn green
May 16, 2012
TOUCHED BY LYME: Teen with Lyme will be featured on ABC's 20/20 show
May 12, 2012
TOUCHED BY LYME: Misdiagnosed Lyme turned into horrific experience
May 4, 2012
TOUCHED BY LYME: "A lost childhood: The hidden faces of Lyme disease"
May 4, 2012
TOUCHED BY LYME: Four years since AG action & we're still stuck with the d*** IDSA guidelines
May 1, 2012
TOUCHED BY LYME: 20-year-old’s advice to her 14-year-old self: “You gotta have hope”

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