CDC website removes link to IDSA guidelines. Just lipstick on a pig?
Thanks to Lyme advocates on Facebook this morning for pointing out that the CDC Lyme pages were updated on Dec.1, 2017, with a number of notable changes.
For instance, the agency has REMOVED the link to the Infectious Diseases Society of America’s 2006 Lyme guidelines from its Lyme treatment page. Other references to those guidelines have apparently been disappeared from throughout the website as well.
For anyone new to this issue, the IDSA guidelines have long been like a sharp poke in the eye to the Lyme community. The guidelines define Lyme so narrowly that many people are denied a diagnosis in the first place. If you do manage to get diagnosed under their restrictive criteria, the guidelines allow only very brief treatment.
Insurance companies love the IDSA Lyme guidelines, because they can avoid paying for longer treatment for people with Lyme disease. People suffering with Lyme disease hate them, because the guidelines make it difficult, if not impossible, to get the treatment they need to get well.
So, having the CDC finally remove this link from its website is…interesting.
Here’s a screen shot of the CDC’s Lyme treatment page from Nov. 1, 2017. You can see that odious link in the middle there, shining bright as day.
And here’s what the page looks like this morning (Dec. 2, 2017):
Does this represent a change of heart by the CDC regarding Lyme treatment? Probably not. If you look at the current page, the recommendations for early treatment are in line with IDSA guidelines, without naming them.
And you’ll notice that for information about “chronic Lyme disease” and long-term treatment, the CDC page kicks you to the National Institutes of Health website. If you follow the link, you’ll find the same-old, same-old tripe about how long-term treatment doesn’t help, etc. (Based on three statistically puny studies of “chronic Lyme” the NIH funded years ago.)
Perhaps the CDC is trying to make its ties to the IDSA less glaringly obvious.
What’s the old phrase about putting lipstick on a pig? Still a pig.
In a separate but related development: The primary architect of the 2006 IDSA Lyme guidelines, Dr. Gary Wormser, was recently named to the new federal Tick-Borne Diseases Working Group. LymeDisease.org is protesting his appointment, based on his flagrant financial conflicts of interest with lab companies and other commercial enterprises.
Click here to read more about this issue.
Click here to sign our petition to the Department of Health and Human Services.
TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. She is co-author of When Your Child Has Lyme Disease: A Parent’s Survival Guide. Contact her at email@example.com
- December 2, 2017 at 11:10 am
A small but significant step!
Wormser’s sand castle continues to crumble…
- December 2, 2017 at 12:24 pm
Time for the CDC to get it’s act together and find the courage to acknowledge this disease that has been documented by thousands of cases. The class action suit will only grow in this current stand.
- December 2, 2017 at 6:03 pm
Definitely step in the right direction, and lipstick on a pig…..still a pig. But I see one pig that needs to be put on a spit and roasted.
- December 2, 2017 at 7:16 pm
My doctor told me they ate not supposed to even test for lyme anymore because people are crying wolf to much.
- December 4, 2017 at 11:35 pm
You can alert your doctor to this article about wolves and Lyme disease!
- December 3, 2017 at 6:57 am
the TBD committee should provide additional opportunities for comment after the first meeting and more opportunities for spoken comment.
what is the protocol for accessibility of comments.
are all comments available to all members of the committee, or is the process selective, and if so, who selects and why.
- February 2, 2018 at 5:35 am
I am a bedridden Lyme patient. I have noticed this “announcement” before about the CDC removing the IDSA treatment guidelines. Not true. If you go to the CDC Site and type “Lyme” in the search you will get a page that directs you to “treatment”. The treatment is presented in a chart. The chart is IDENTICAL to the IDSA guidelines. Therefore, the IDSA guidelines have NOT been removed. They’ve just been moved into a handy to read chart. So, this “great news” that the IDSA guidelines have been removed is not true.
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