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LymeDisease.org’s Press Room

Welcome to LymeDisease.org’s Press Room. LymeDisease.org leaders are expert sources for commentary on Lyme and related tick-borne illnesses and are available to the media for interviews. Below find information you might find helpful from basics to images to recent news and press releases.

About LymeDisease.org

Founded in 1989, LymeDisease.org, the leading research advocacy organization for Lyme disease, advocates nationally for quality accessible healthcare for patients with Lyme and other tick-borne diseases. We are committed to shaping health policy through advocacy, legal and ethical analysis, education, physician training and medical research. learn more →

Media Contact

LymeDisease.org
PO Box 1352
Chico, CA 95927
media@lymedisease.org

Press Releases

LymeDisease.org launches interactive Lyme Disease Symptom Checklist

Think you may have been bitten by a tick? Not sure if you have Lyme disease? A new online symptom checklist tool, developed by LymeDisease.org, one of the largest patient advocacy organizations, may help in determining the likelihood that you’ve contracted the illness. Read More

LymeDisease.org invited to attend White House for Precision Medicine Summit

LymeDisease.org, the leading research advocacy organization for Lyme disease, announced today that Lorraine Johnson, chief executive officer, has been invited by the White House to participate in the upcoming Precision Medicine Initiative Summit on Thursday, February 25, in Washington, DC. Read More

Big data and patient-powered research aim to solve complex diseases

Lorraine Johnson, CEO of LymeDisease.org, will join representatives from the White House Office of Science and Technology and Johns Hopkins Medicine at the annual meeting of the American Association for the Advancement of Science (AAAS) on February 13 in Washington, DC. They will discuss the tremendous promise big data holds for solving complex illnesses like Lyme disease. Johnson’s talk, Big Data and Patient Powered Research, will explain why patient-centered big data may be a game changer for chronic Lyme disease. Read More

LymeDisease.org launches MyLymeData − the first patient-powered research project aimed at improving care for Lyme disease patients

LymeDisease.org, one of the largest non-profit Lyme disease patient advocacy organizations in the world, today announced the launch of MyLymeData, the first-of-its-kind national patient-powered research project aimed at improving the quality of care for Lyme disease patients. Read More

LymeDisease.org’s Lorraine Johnson tapped to participate in “citizen science” forum at the White House

LymeDisease.org CEO Lorraine Johnson has been selected to participate in a White House forum hosted by the White House Office of Science and Technology Policy and Domestic Policy Council, “Open Science and Innovation: Of the People, By the People, For the People,” which will be live-webcast on Wednesday, September 30th. Read More

Open Science and Innovation: Of the People, By the People, For the People

US government’s National Guideline Clearinghouse posts first Lyme disease treatment guidelines to comply with Institute of Medicine standards

Lyme treatment guidelines developed by the International Lyme and Associated Diseases Society (ILADS) were posted today on the National Guideline Clearinghouse (NGC). They are the first Lyme guidelines which comply with the Institute of Medicine’s new standards for rigorous evidence assessment and patient engagement in the development process. Read More

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