Help find a cure for Lyme disease
What Makes MyLymeData Different?
MyLymeData is research done differently. It is the first national large-scale study of chronic Lyme disease. This study is different from all other Lyme disease studies because it’s patient-powered BIG DATA Lyme disease research.
To Solve Big Problems
You Need Big Data
Big Data Looks
At Typical Patients
Big Data Allows
Longer Term Studies
Patients can’t wait.
The last NIH treatment trial recruited over 15 years ago.
Patients can’t wait and we don’t have to. Let’s do this together!
LymeDisease.org will analyze data and provide information to the community through publication of white papers and peer reviewed articles. We will also partner with researchers and clinicians who are interested in research that puts patient interests at the center and seek to cure or improve quality of life. Our previous surveys have been published in peer-reviewed articles and used to inform healthcare policy issues affecting the community. Our last published survey has been downloaded over 4,000 times.
The Top Ten Things We are Investigating:
- What is the natural course or progression of Lyme disease? For example, does Lyme disease become worse over time?
- Which treatments (prescription or alternative) are the most effective?
- What factors predict poor outcomes? For example, is delayed diagnosis associated with worse outcomes?
- What are the harms or risks associated with different treatments?
- Can Lyme disease be sexually transmitted or passed from mother to unborn child?
- Are there genetic factors that affect the course of the disease?
- What is the geographic distribution and prevalence of Lyme disease?
- Some patients have recovered and are well. What treatment made the difference?
- What is the cost of illness associated with Lyme disease?
- What role do co-infections play in the course of the illness?
Sign up to become part of the study. It’s easy.
Take your first survey. The first survey is a little longer than most, but you should be able to complete it within 30 minutes. You can take a break and come back to it if you need to. After the first one, we will send you additional surveys (about quarterly) asking additional questions and tracking your progress. We will let you know what we discover.
And, spread the word! The more people that participate in this study, the more we will learn about Lyme disease and how to treat it. So tell your friends, post this on Facebook, and Twitter away. There’s power in numbers!