News

The federal Tick-Borne Disease Working Group’s online meeting for August has been cancelled. As of this writing, no replacement date has been announced. According to the Health and Human Services website: This meeting has been cancelled. The next meeting will be held in... Read More »

At LymeDisease.org, we fight to make the patient voice stronger, support science-based advocacy, create legislative change, and to create a future where Lyme patients can receive the treatments they need to get well. When you become a member of LymeDisease.org, you partner with... Read More »

Elephant Journal, July 15, 2020 By Holly Watts When I was first diagnosed with late-stage (chronic) Lyme disease, my doctor told me that the recovery process would be like a dance. “Sometimes, the infection will take the lead and be in control of your body,” he said, “Other... Read More »

(On August 4, we were notified that the August meeting of the TBDWG has been cancelled. No details have been given.) The next meeting of the Tick-Borne Disease Working Group (TBDWG) will be held on August 13-14, from 9:00 a.m. to 5:00 p.m., Eastern Time. This is an online meeting... Read More »

Insider.com, July 14, 2020 By Meredith Cash Washington Mystics superstar Elena Delle Donne petitioned the WNBA for a medical opt-out from the 2020 “bubble” season due to her chronic Lyme disease. The league rejected her opt-out request despite receiving a letter from... Read More »

“A Celebration of a Life Well-lived for Neil Spector, MD” will be shared via Facebook Live on Saturday, July 18, 6-7:30 pm, Eastern Time. The virtual event is open to anyone who cares to attend. Afterwards, the video will be posted to Facebook and YouTube, for people... Read More »

The federal Tick-Borne Disease Working Group met online on July 8. Panel members continued to discuss what should be included in the group’s upcoming Report to Congress. LymeDisease.org’s Lonnie Marcum live-tweeted the event. Here’s her take on what transpired. Read More »

USA Today, June 22, 2020 by Isabel Rose and Dana Parish With overlapping symptoms and a ferocious tick season already upon us, we’re in for a confusing — and dangerous — summer. In mid-March, shortly after coronavirus quarantine rules went into effect in New York, sportscaster... Read More »

June 17, 2020 by Carrie Arnold As a Lyme patient, Jennifer Crystal has a lifetime of experience dealing with severe illness. So when the 42-year-old writer and patient advocate came down with what appeared to be a mild case of food poisoning in early March, she cancelled her... Read More »