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Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as Vice-President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

TOUCHED BY LYME: Lyme patients need treatment options

15
JUN
2010
The Institute of Medicine, part of the National Academy of Sciences, is in the midst of taking a look at Lyme disease. In April, the IOM heard from various scientists. Today, the IOM committee held the second of several "listening sessions" via telephone conference... Read More »

TOUCHED BY LYME: More comment about school disallowing Lyme teen's photo in yearbook

23
MAY
2010
A Pennsylvania school district is making life even more difficult for a light-sensitive Lyme patient. Family therapist Sandy Berenbaum, who specializes in helping Lyme families deal with the school system, offers her perspective. Read More »

TOUCHED BY LYME: Pennsylvania school district won’t let light-sensitive Lyme patient have specially made picture in the yearbook

21
MAY
2010
Any light brighter than a cell phone's glow causes seizures for this teenager with Lyme disease. Yet she wants a graduation photo in the school yearbook. Unfortunately, school officials won't allow the inventive solution she devised. Read More »

TOUCHED BY LYME: Homeschooling with chronic illness

21
MAY
2010
What to do about schooling is one of the most frustrating challenges facing families of children with Lyme disease. Read More »

TOUCHED BY LYME: Like the "Kevin Bacon Game"–making Connecticut connections for Lyme patients

18
MAY
2010
Even if you don’t live in Connecticut and don’t know anybody in Connecticut, you probably know somebody who DOES know somebody in Connecticut. We need to find those people--pronto. Read More »

Nutritional strategies for healing from Lyme disease

16
MAY
2010
(Book review) Improving diet may be one of the most important steps a Lyme patient can take on the road back to health. Read More »

(Guest blog) Listening to a ghost: Dr. Dave Martz talks about recovering from ALS

03
MAY
2010
"Spirochick Alix" blogs about Dr. Dave Martz's presentation at CALDA's recent Lyme patient conference. Hearing how he overcame ALS touched her especially, because her father died of ALS the same year Dr. Martz was diagnosed with it. Read More »

TOUCHED BY LYME: Research offering hope to Lyme patients

10
APR
2010
Dr. Raphael Stricker will discuss important research projects which offer hope to those with tick-borne diseases, at CALDA's upcoming Lyme patients' conference. Read More »

TOUCHED BY LYME: The spectrum of Lyme disease

07
APR
2010
Dr. Christine Green will discuss "The Many Faces of Lyme Disease" at CALDA's upcoming April 24 patients' conference GETTING HEALTHY AGAIN IN 2010. Read More »
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