(Book review) In his book, ON HOPE AND HEALING: FOR THOSE WHO HAVE FALLEN THROUGH THE MEDICAL CRACKS, Dr. Neil Nathan uses the tools of both western and alternative medicine to explore how chronically ill people can return to health. Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Lyme advocates use Facebook to make global statement
25
MAR
2011
When Liz Schmitz, of the Georgia Lyme Disease Association, used Facebook to locate other Lyme advocacy groups, she not only found scores of them in the United States, but a significant number in other countries. Among nations she found represented on Facebook are Canada, Ireland,... Read More »
TOUCHED BY LYME: Lyme education outreach for San Francisco cabbies
23
FEB
2011
Robin Krop, a San Francisco Lyme activist, finds herself riding taxis several times a week, because she has a bad hip and bouncing buses are too uncomfortable. Before she gets in the cab, she asks the driver if his shock absorbers are in good shape. If he says they are, then... Read More »
TOUCHED BY LYME: Foundation shines light on Lyme in Australia
04
FEB
2011
The widow of a man who died from complications of Lyme--even though officials say the disease doesn't exist in Australia--has formed a foundation in his memory. The Karl McManus Foundation aims to help increase recognition of tick-borne diseases in Australia, so that... Read More »
TOUCHED BY LYME: Got Lyme? In your 20s and 30s? Try Healkick.
27
JAN
2011
A new group has been formed for young adults dealing with neuroimmune conditions such as chronic Lyme disease, chronic fatigue syndrome (ME/CFS), fibromyalgia, atypical MS, multiple chemical sensitivities, and mold illness. Read More »
TOUCHED BY LYME: Helpful book about everything to do with PICC lines now available free on the internet
20
JAN
2011
(Book review) INFUSING FOR LYMIES: A step-by-step guide with money-saving tips for buying and infusing IV medications, maintaining a PICC line, minimizing the herx reaction, insurance denials and more. (Note: this blog has been updated with new information as of Jan. 25.) Read More »
TOUCHED BY LYME: Florida patients protest local reprinting of now-infamous Chicago Tribune article; “There’s been enough bashing of Lyme patients.”
17
JAN
2011
A small band of Florida Lyme patients gathered outside the offices of the Orlando Sentinel newspaper Friday, to protest its reprinting of the Chicago Trib's accuracy-challenged article about chronic Lyme disease. Read More »
TOUCHED BY LYME: Overcoming the "dork factor" when it comes to tick protection
16
JAN
2011
Does anybody really tuck their pants in their socks? Read More »
TOUCHED BY LYME: New cookbook provides road map for Lyme Inflammation Diet
14
DEC
2010
Most people dealing with Lyme eventually come face to face with the need to improve their diet. It may include going gluten-free, and/or eliminating assorted other food allergens, and/or finding ways to incorporate more organic, fresh produce into their daily meals. The simple... Read More »
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