TOUCHED BY LYME: (guest blog) Adapting to Lyme life requires patience, courage & a spiritual shift
Ten personal discoveries about living with chronic Lyme.
Cyndi Orr, a former school teacher, became ill with Lyme disease about 8 years ago. Her life has changed dramatically since she began living with debilitating symptoms. However, along this journey she discovered a few distinctions that helped her adapt to living with a chronic illness. She was inspired to write the following list after reading the blog of Toni Bernhard, author of “How to be Sick: A Buddhist-inspired Guide for the Chronically Ill and their Caregivers.”
When I first became ill with Lyme disease I knew I had to learn to adapt to this new way of living, but I had NO idea how to do that. Here are 10 discoveries I made along the way:
- October 2, 2011 at 1:06 pm
I was so glad to read that my post inspired you to write this. It is so full of insights and helpful tips that I've posted it on the Facebook page I have for my book. What you say here can help anyone who's struggling with chronic pain or illness.
Thank you so much for this inspiring post. I learned a lot.
- October 2, 2011 at 1:20 pm
Thanks for this list — very concise and direct. Applies to many of us living with an invisible, chronic, and pain-in-the-youknowwhat disease (mine is multiple sclerosis). You make a great point about learning to live differently — our priorities, our definitions of ourself and of success, all of our relationships — not by trying to force ourselves back into our old "boxes", but by learning to accept these changes and grow with them.
- October 2, 2011 at 7:52 pm
Thank you for writing this article. It is well written.
I agree with you that thinking positive is helpful but one is still at the mercy of one's karma (what went before).
I particularly like your comment "this disease might take my body, but it can't have my soul".
- October 3, 2011 at 11:24 am
Thank you, Cyndi.you have eloquently written things which so many of us experience but cannot express ourselves.
- October 3, 2011 at 4:44 pm
It is my joy to know you, Cyndi. I appreciate the effort it must have taken to embed your significant wisdom into words – and you do speak for all of us. Wishing you increasing health and sending you much love.
- October 3, 2011 at 4:47 pm
Your determination to re-discover and embrace new meaning and purpose in life, as a result of one of the most challenging of diseases, takes the greatest courage to never stop finding and giving joy. This is a beautiful teaching of deep wisdom…Thank you!
- October 3, 2011 at 8:33 pm
Cyndi – you are an inspiration to all of us lymies. Learning to accept and live my "new normal" took a long time, but by the grace of God, I'm succeeding.
Thank you for sharing your insight and your heart!
- October 3, 2011 at 9:04 pm
Wonderful sharing, insights and wisdom. Thank you for sharing this, it is beautifully written! I experienced so many of the same thoughts, feeling and emotions along with so many others I'm sure…and for several years felt I was alone too. I was confinced that Lyme had gotton the best of me until just recently…
I found a new natural product that is so affordable and gives me tons of energy…It's truly a miracle! If your interested just email me and I'll be happy to send you some as a gift from me… a Lymee that's now free! Many Blessing to You!
- April 28, 2012 at 6:04 am
This is in response to Shiela Stewarts comment…Please let me know what that natural supplement yo are taking that gives you energy. I am dying from Chronic fatigue due to my Chronic Lyme disease. Pls email me at email@example.com and share this information, if you don’tmind. Thanks so much. Sharon Meier
- October 4, 2011 at 6:04 pm
Thanks for sharing. I was just diagnosed and still trying to get my arms around it and see if the meds do anything. From all I've read, there are people who are suffering much more than I am (so far), so I feel fortunate.
I wrote a little about what happened: http://bclyme.wordpress.com
- October 5, 2011 at 6:47 am
Thank you for sharing this. It made me smile in multiple ways. I, myself, am battling this disease. You are truly right. Humor does help 🙂 Take care of yourself and stay true to you. You're a very special and strong woman.
- October 5, 2011 at 8:30 am
Hello Cyndi! Reading the article made me realize that it is the exact Cyndi that I knew in high school, i.e., reasonable and compassionate. God Bless! Amir
- October 5, 2011 at 8:57 am
To let you know the couple times we met at our Lyme group meetings, I felt you were like a guiding light in a dark tunnel, warm and bright. So helpful during those times of darkness all of us afflicted with Lymes feels, your support at the meetings was invaluable and I know you are greatly missed here in SLO.
- October 17, 2011 at 3:56 pm
Thank you so very much for sharing your story. I have many friends who have undergone the strenuous journey of recovery from chronic Lyme. I would like to share though that one of my friends, who's entire family was stricken by this horrific epidemic, found relief with hyperbaric oxygen therapy. Apparently when done correctly it gave them relief from their symptoms even 4 years after they were done with treatments. I guess there are many clinics using hyperbarics that can claim they can treat Lyme but do not do it properly, waisting people's time and money. The place they went to was in Larkspur CA. This is their website http://www.Improvehealing.com. I feel that if I know of a therapy that works I should share it. Take it or leave it. Thank you!
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