I’m always looking for new ways to explain to people the complex world of Lyme disease. Not only is the illness itself biologically complex, able to manifest in countless different ways, but the history and politics of this particular disease muddy the picture even more. Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Lyme Awareness Trifecta at California nurses’ conference
14
MAR
2009
Nurse practitioners had three opportunities to learn about Lyme disease at a recently concluded statewide conference in Sacramento: Read More »
TOUCHED BY LYME: No Lyme in California?
12
MAR
2009
Today I attended California's Lyme Disease Advisory Committee meeting in Sacramento. It's a group which advises the state health department on tick-borne disease issues. I made the following remarks to the committee during the public comment period. Read More »
TOUCHED BY LYME: Did Lyme contribute to killing of pastor?
10
MAR
2009
The eyes of the Lyme community are riveted on this week’s tragic shooting death of an Illinois minister. The alleged shooter, 27-year-old Terry Sedlacek, has reportedly suffered from neurological Lyme disease for years, and some people believe his illness may have contributed to... Read More »
TOUCHED BY LYME: Financial help for Lyme drugs?
04
MAR
2009
Sooner or later, anyone dealing with Lyme disease comes face to face with the high cost of prescription medicines. Even those who start out with insurance coverage for drugs may find their benefits run out before their need for them does; or the medicines they require aren’t... Read More »
TOUCHED BY LYME: "Beating Lyme"
02
MAR
2009
The task for an author who wants to write a book about Lyme disease is daunting. This is due not only to the complex illness itself, which can manifest in literally hundreds of ways, but to the complicated history and politics which keep Lyme disease in a separate category from... Read More »
TOUCHED BY LYME: Lyme-Autism connection?
25
FEB
2009
A few years back, Tami Duncan was a mother of an autistic son, searching for ways to help her child. As it happened, she also had ill-defined health problems of her own. Like many of us who couldn’t find answers elsewhere, she turned to the internet. Early on, she connected with... Read More »
TOUCHED BY LYME: Ticks in the snow
19
FEB
2009
The photo to the left is an engorged Ixodes Pacificus, otherwise known as the western black-legged tick, notorious carrier of Lyme disease, sitting on snow one November day in Shingletown, California. The picture was snapped by professional photographer Michelle Mahood, moments... Read More »
TOUCHED BY LYME: Wisdom of the Lyme Crowd
14
FEB
2009
As a Lyme support group leader, the first piece of advice I give anyone dealing with tick-borne infections is to join at least one on-line support group, such as CaliforniaLyme. The reason? In the topsy-turvy world of Lyme disease, people who have traveled this difficult road... Read More »
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