Bestselling author Rebecca Wells offers a new book, a website, and a poignant account of her life with Lyme disease. Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: The “poppy motivating factor” will get you every time
01
SEP
2009
Lost in translation? A press release I wrote two years ago for the California Lyme Disease Association has turned up on the internet in a very bizarre form. Read More »
TOUCHED BY LYME: 30 things you don’t know about Lyme disease
29
AUG
2009
You may have heard of lists like “20 things you don’t know about me” making the rounds of social networking sites like Facebook. Here’s a new twist, sponsored by the organizers of “Invisible Illness Awareness Week” (September 14-20, 2009). It’s a creative way to share your story,... Read More »
TOUCHED BY LYME: What to say to a person who’s chronically ill?
27
AUG
2009
Lisa Copen, founder of National Invisible Chronic Illness Awareness week (September 14-20, 2009) recently asked her Twitter followers to suggest good things to say to a person who is chronically sick. Here are some of the replies: Read More »
TOUCHED BY LYME: Gluten-free eating hits the mainstream
10
AUG
2009
Many folks with Lyme find they do better if they avoid gluten-containing foods (wheat, barley, rye). As the ranks of people avoiding gluten rises, food manufacturers are starting to take notice. Yet switching to gluten-free eating can still be a challenge. Here are some tips. Read More »
TOUCHED BY LYME: How to still have fun when you’re energy-sapped
10
JUL
2009
The CFIDS (Chronic Fatigue) Association of America pulled together a list of low-energy entertainment ideas. See what you think. Read More »
TOUCHED BY LYME: "Under Our Skin" makers honor San Diego Lyme activist
02
JUL
2009
CALDA member Anne Corazza of San Diego is now featured on the "Meet the Activists" page of the Open Eye Pictures website. Anne helped persuade a San Diego theater to book "Under Our Skin," and then, along with a team of volunteers, helped get the word out to... Read More »
TOUCHED BY LYME: A beginner’s guide to all things Lyme
30
JUN
2009
Almost every day, someone will post the following question on one of the many Lyme-related on-line support groups: I'm newly diagnosed (or think I might have Lyme.) How can I find out what I need to know? Read More »
TOUCHED BY LYME:"Virtual theater party" for Under Our Skin–be there or be square
24
JUN
2009
I don’t know about you all, but I’m terribly disappointed that I live too far away to attend any of the moviehouses showing Under Our Skin this week. After all, the theatrical release of this film is one of the biggest events to hit the Lyme world, ever. So, I’m making up for it... Read More »
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