The eyes of the Lyme community are riveted on this week’s tragic shooting death of an Illinois minister. The alleged shooter, 27-year-old Terry Sedlacek, has reportedly suffered from neurological Lyme disease for years, and some people believe his illness may have contributed to... Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Financial help for Lyme drugs?
04
MAR
2009
Sooner or later, anyone dealing with Lyme disease comes face to face with the high cost of prescription medicines. Even those who start out with insurance coverage for drugs may find their benefits run out before their need for them does; or the medicines they require aren’t... Read More »
TOUCHED BY LYME: "Beating Lyme"
02
MAR
2009
The task for an author who wants to write a book about Lyme disease is daunting. This is due not only to the complex illness itself, which can manifest in literally hundreds of ways, but to the complicated history and politics which keep Lyme disease in a separate category from... Read More »
TOUCHED BY LYME: Lyme-Autism connection?
25
FEB
2009
A few years back, Tami Duncan was a mother of an autistic son, searching for ways to help her child. As it happened, she also had ill-defined health problems of her own. Like many of us who couldn’t find answers elsewhere, she turned to the internet. Early on, she connected with... Read More »
TOUCHED BY LYME: Ticks in the snow
19
FEB
2009
The photo to the left is an engorged Ixodes Pacificus, otherwise known as the western black-legged tick, notorious carrier of Lyme disease, sitting on snow one November day in Shingletown, California. The picture was snapped by professional photographer Michelle Mahood, moments... Read More »
TOUCHED BY LYME: Wisdom of the Lyme Crowd
14
FEB
2009
As a Lyme support group leader, the first piece of advice I give anyone dealing with tick-borne infections is to join at least one on-line support group, such as CaliforniaLyme. The reason? In the topsy-turvy world of Lyme disease, people who have traveled this difficult road... Read More »
TOUCHED BY LYME: Disbelieving Lyme disease
13
FEB
2009
A mom I know whose whole family has struggled with Lyme disease for over 20 years called me after my recent posting about teenagers with Lyme and said: “More than anything, teenagers with Lyme need you to believe them. So many people—doctors, teachers, school friends—don’t... Read More »
TOUCHED BY LYME: When teenagers have Lyme disease
08
FEB
2009
Dealing with Lyme disease and other tick-borne infections is a miserable ordeal at any age, but it offers unique challenges when the person going through it is a teenager. Read More »
TOUCHED BY LYME: Lyme in them thar zip codes
05
FEB
2009
A steady stream of responses has flowed into my email box regarding my previous blog post “No Lyme in (your zip code here).” What follows are quotes from your different emails: Read More »
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