An off-hand question from a neighbor was eerily prophetic. Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Kids need to feel safe and protected, and so do their families (Guest blog by Sandy Berenbaum)
10
APR
2009
When I started my psychotherapy practice 22 years ago, specializing in adolescents and families, I recognized that, as a mother and as a psychotherapist, the core of my philosophy about children is that they need to feel safe and protected. Actually they need to be safe and... Read More »
TOUCHED BY LYME: When a medical problem calls for non-medical help
10
APR
2009
I recently received a phone call from a mom whose two teen-aged sons are terribly ill with Lyme and coinfections. In addition to all the medical and emotional issues her family is dealing with, she’s also concerned about schooling, since one of her sons is too sick even for... Read More »
TOUCHED BY LYME: Lymelife for Dogs
09
APR
2009
There’s a scene in the Lyme documentary Under Our Skin, where somebody demonstrates how to “flag” for ticks. With his trusty long-haired dog trotting through the woods beside him, the man drags a big white cloth alongside the trail, and shows the camera how quickly and easily he... Read More »
ACTION ALERT: FEDERAL BILL NEEDS YOUR HELP
30
MAR
2009
The Lyme and Tick-Borne Diseases Prevention, Education and Research Act of 2009, HR 1179, was introduced into the US House of Representatives by New Jersey Congressman Chris Smith on February 25. The bill authorizes creation of an advisory committee guaranteeing patients a seat... Read More »
TOUCHED BY LYME: A political and medical snake pit
19
MAR
2009
I’m always looking for new ways to explain to people the complex world of Lyme disease. Not only is the illness itself biologically complex, able to manifest in countless different ways, but the history and politics of this particular disease muddy the picture even more. Read More »
TOUCHED BY LYME: Lyme Awareness Trifecta at California nurses’ conference
14
MAR
2009
Nurse practitioners had three opportunities to learn about Lyme disease at a recently concluded statewide conference in Sacramento: Read More »
TOUCHED BY LYME: No Lyme in California?
12
MAR
2009
Today I attended California's Lyme Disease Advisory Committee meeting in Sacramento. It's a group which advises the state health department on tick-borne disease issues. I made the following remarks to the committee during the public comment period. Read More »
TOUCHED BY LYME: Did Lyme contribute to killing of pastor?
10
MAR
2009
The eyes of the Lyme community are riveted on this week’s tragic shooting death of an Illinois minister. The alleged shooter, 27-year-old Terry Sedlacek, has reportedly suffered from neurological Lyme disease for years, and some people believe his illness may have contributed to... Read More »
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