Any month can be a good time to raise awareness of Lyme disease, but May is Lyme Disease Awareness Month and offers special opportunities. Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Inflammation–Taming the Fire
16
MAR
2010
“Inflammation is a bonfire produced by the immune system in reaction to allergies, infections, poor diet, chemicals, heavy metals, and intestinal dysbiosis. It is the inflammatory response that produces many of the symptoms of Lyme disease.” Read More »
TOUCHED BY LYME: When loved ones won't heed our hard-earned advice
16
MAR
2010
What should you do when you think a loved one might have Lyme disease, but they just don't want to hear about it? Read More »
TOUCHED BY LYME: Dr. Dave Martz, who overcame his own ALS death sentence with Lyme treatment, will keynote CALDA conference April 24
15
MAR
2010
As Dave Martz lay dying, an idea serpentined around his mind and would not loosen its grip: Despite the absolute diagnosis and the insistence of the doctors, including a world expert, that he was dying of ALS, despite his own vow to face things head-on and reject the lure of... Read More »
TOUCHED BY LYME: How the state of California deals with Lyme disease
13
MAR
2010
I attended California’s Lyme Disease Advisory Committee (LDAC) meeting on Thursday. This is a group which advises the state’s health department on matters pertaining to Lyme and other tick-borne infections. The panel receives updates on what the California Department of Public... Read More »
TOUCHED BY LYME: How to get out of the hellhole. An open letter to Albany basketball coach Will Brown and his local reporter
13
FEB
2010
My heart goes out to you, Coach Brown. I know how much you are suffering and I know how much your family is suffering.....But you know what? You don Read More »
TOUCHED BY LYME: (Book review) Sick & Tired–How America's Health Care System Fails Its Patients
11
FEB
2010
"Jorgensen’s personal story is (sadly) not uncommon in the Lyme world. But she uses it to demonstrate a larger point. This lady went into her Lyme journey with a Ph.D. in economics, trained to unravel bureaucratic red tape and the ins and outs of labor-related issues like... Read More »
TOUCHED BY LYME: Oscar nominators DON’T pick Under Our Skin; let’s vow to keep reaching out with this film
02
FEB
2010
Oscar nominees were announced today, and the Lyme documentary Under Our Skin was NOT chosen. (Two months ago, when it was named to the “short list” of potential nominees for Best Documentary Feature, the Lyme community’s hopes were high.) I’m disappointed the Academy Awards... Read More »
TOUCHED BY LYME:When young adults must deal with chronic illness
20
JAN
2010
Author Laurie Edwards explores how to best cope with chronic illness in your Twenties and Thirties. Read More »
LDO achieved Gold level: Committment To Transparency