Examining the huge disconnect between actual Lyme patients and those who set medical policy. Read More »
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Who gets the Lyme research funding, anyway?
22
SEP
2011
The 2011 CALDA Lymewalks are raising money for scientific research into Lyme and tick-borne diseases. Here's where the money goes. Read More »
TOUCHED BY LYME: IVs remain financial stumbling block for many Lyme patients
15
SEP
2011
Long-term intravenous antibiotic treatment for Lyme disease is very expensive and often not covered by health insurance. One Wyoming couple found it pays to shop around. Read More »
TOUCHED BY LYME: Lyme activist wins $10,000 scholarship for her advocacy work
13
SEP
2011
She submitted a winning video. Read More »
TOUCHED BY LYME: Triathlete beats back Lyme a second time; she’ll share her story at Sacramento Lymewalk
13
SEP
2011
Pamela O'Kane's remarkable Lyme story took a challenging turn after last year's Lymewalk. Read More »
TOUCHED BY LYME: Filing for disability benefits when you have Lyme disease
12
AUG
2011
Guest blogger & Lyme advocate Barbara Arnold, an attorney who practices disability law in Berkeley, CA, explains some of the factors involved when a Lyme patient files for SSDI. Read More »
TOUCHED BY LYME: Casting about for a new way to look at Lyme
04
AUG
2011
A Lyme patient finds that a cast on her foot changes everything. Read More »
TOUCHED BY LYME: Here’s my tweet to the president. What’s yours?
04
JUL
2011
President Barack Obama is holding a Twitter Town Hall on Wednesday, July 6, at 2 pm eastern time. Read More »
TOUCHED BY LYME: Letters to the editor are a simple way to make a point
02
JUL
2011
Writing a succinct letter to your local newspaper can be a good way to get started with Lyme activism. Here are a few other suggestions. Read More »
LDO achieved Gold level: Committment To Transparency