News

Press release from Charles E. Holman Morgellons Disease Foundation, Oct. 18, 2016: Morgellons disease is a poorly understood condition characterized by spontaneously occurring, slowly healing skin lesions containing multicolored filaments and accompanied by symptoms such as... Read More »

This guest blog is used by permission from the web magazine Folks, July 7, 2016 . by Rob LeFebvre . A park bench sits near a still pond, orange fall leaves from a tree overhead. The image is still, serene, and beautifully composed. You’d be forgiven for thinking this was the work... Read More »

Press release from Charles E. Holman Morgellons Disease Foundation June 15, 2016 Until recently, Morgellons disease was widely believed in the medical community to be a delusional illness. However, with research support from The Charles E. Holman Morgellons Disease Foundation... Read More »

  Over 17,000 people have already completed our Symptom Checklist. (We hope you are one of them!) If you want help even more people find it, share the Symptom Checklist banner on your website. Follow the simple directions below.         According to the... Read More »

The number one problem that Lyme disease patients report is that it takes so long for them to be diagnosed—two or more years in most cases. We all know that early diagnosis is key to successful treatment. The problem is that people don’t have a convenient way to take evidence to... Read More »

I was pleased and proud to accept a “First Place–Adult Non-fiction” award from the Northern California Publishers and Authors association at a banquet near Sacramento on Saturday. When Your Child Has Lyme Disease: A Parent’s Survival Guide, which I... Read More »

MyLymeData—the patient-powered project that allows people to pool their Lyme experiences to help further medical research—needs you to help spread the word. We currently have over 4,000 people signed up and we’d like to reach at least 10,000. If you have a website, e-newsletter,... Read More »

Press release, April 20, 2016: Despite scientific studies, the CDC and IDSA dismiss any existence of chronic Lyme disease. Kenneth B. Liegner, M.D. has compiled into a single volume a compelling argument that the disease does exist in his book, “In the Crucible of Chronic Lyme... Read More »

Patient representation on the revised IDSA guideline panel: Is it real or token? The IDSA guideline development process is a big deal—without making sure the process is fair, there is no real chance for change in the guidelines. And patients need change.  We need to be at the... Read More »