News

The US Department of Health and Human Services today gave us a statement regarding Dr. Gary Wormser’s position on the federal Tick-Borne Diseases Working Group. According to an HHS spokesperson: “Dr. Gary Wormser has declined the invitation to serve on the Tick-Borne Disease... Read More »

If you go to the US Department of Health and Human Services website, you’ll see a beautiful thing. Dr. Gary Wormser’s name has been removed from the list of members of the Tick-Borne Diseases Working Group. We await word from HHS about who may be named to replace him. Presumably... Read More »

Click here to sign our Change.org petition to HHS The federal Tick-Borne Disease Working Group was established by 2016’s 21st Century Cures Act. The idea was to bring together a diverse set of stakeholders, including treating physicians, researchers, patients, advocates and... Read More »

David Michael Conner has published two companion blogs on the Huffington Post related to how Lyme disease can lead to hearing loss. The first is an interview with audiologist Tracy Murphy, who notes that many Lyme patients lose their hearing from the disease. Click here to read... Read More »

The United States Department of Health and Human Services has finally named members of the TBD Working Group that was established by the 21st Century Cures Act in 2016. The law called for appointments to include a diversity of viewpoints and specialties regarding Lyme disease.... Read More »

Along with new and continuing challenges for the Lyme community, there is also much to be grateful for this Thanksgiving season. Here’s some of what’s on our Gratitude List this year: . . . . . . MyLymeData offers leap forward for Lyme research  Almost 10,000 people... Read More »

From Courthouse News Service, Nov. 14, 2017: TEXARKANA, Texas (CN) – Twenty-eight people claim in a federal antitrust lawsuit that Lyme disease victims are being forced to pay hundreds of thousands of dollars for treatment because health insurers are denying coverage with bogus... Read More »

LymeDisease.org’s Lorraine Johnson recently joined Cindy Kennedy on the “Living with Lyme” podcast. Cindy describes Lorraine as a “hero” of the Lyme community, stating: “She is the wind behind the wings of change. She has her fingers on the pulse of all new information and she is... Read More »

Press release from IGeneX, October 16, 2017 IGeneX Inc., a CLIA and New York-approved Reference Laboratory, specializing in testing for tick-borne diseases, is pleased to announce the launch of three new tests that are more inclusive and specific for aiding in diagnosis of... Read More »