Focus – Opinions and Features

Phyllis Mervine delivered the following remarks by telephone at the November 17 meeting of the Tick-Borne Disease Working Group. Good morning. I am Phyllis Mervine, Founder and President of LymeDisease.org, the oldest Lyme patient advocacy nonprofit in the country. I and other... Read More »

Mary Lorusso-DiBara gave the following public comments at the November 17 online meeting of the federal Tick-Borne Disease Working Group. Today I represent our family – five siblings, their children and spouses who have been ravaged physically, emotionally, and financially by... Read More »

Janice Sutton gave the following remarks to the Tick-Borne Disease Working Group on October 27. As a critical care nurse for over a decade, I saved lives, using current–not antiquated–science. But when it came time to save my own 14-year-old daughter’s life from... Read More »

Phyllis Mervine delivered the following verbal comments to the Tick-Borne Disease Working Group on October 27. My name is Phyllis Mervine. I’m the President and Founder of LymeDisease.org. I want to talk about how the CDC incidence map is not working for California. I have talked... Read More »

By Carolyn Degnan One of the biggest problems that chronically ill patients face is “gaslighting” from their physicians/practitioners. I’ve been familiar with that term when talking about a personal relationship. However, I had never heard it applied to a doctor/patient... Read More »

by Arlene Brailey For eight years, my son has been fighting a war against Lyme disease, with me alongside him. I have endured countless sleepless nights, anxious that I am pushing too hard, but more troubled I have not done enough; fearful of backlash from respected colleagues... Read More »

Carl Tuttle, a long-time Lyme activist from New Hampshire, gave the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15. This comment is directed to Dr. Eugene Shapiro. Dr. Shapiro, I sent you an email on September 2, with a list of references... Read More »

Erin Walker delivered the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15, 2020. My name is Erin Walker and I am the wife of PGA Tour winner Jimmy Walker. I am also on the Board of Directors the Global Lyme Alliance. After five months of... Read More »

The following was submitted as a written public comment to the federal Tick-Borne Disease Working Group. By Monica White I am writing today as an advocate, as well as a patient, wife and mother of two children with persistent Lyme disease and multiple co-infections. I served as a... Read More »