Like many people dealing with Lyme disease, my family tries to choose organic produce whenever possible. There’s plenty of research to show that pesticides are harmful to human health, even for people who aren’t fighting chronic illness. And for those who are sick, adding the... Read More »
Touched By Lyme
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy Kupcha Leland has a family member with Lyme disease. She is co-leader of a Lyme patients' support group, and is LymeDisease.org's VP for Education and Outreach. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: Lyme awareness for under 5 bucks
07
MAY
2009
An eight-step method for raising awareness at your public library. Read More »
TOUCHED BY LYME: What about school?
05
MAY
2009
When school-age children and teens fall ill with Lyme disease, there are many additional complications besides obtaining proper medical care. (That’s hard enough….) Another big problem is what to do about school. When attending regular school becomes out of the question, parents... Read More »
TOUCHED BY LYME: Lyme Disease Rocked Our Family
29
APR
2009
An off-hand question from a neighbor was eerily prophetic. Read More »
TOUCHED BY LYME: Kids need to feel safe and protected, and so do their families (Guest blog by Sandy Berenbaum)
10
APR
2009
When I started my psychotherapy practice 22 years ago, specializing in adolescents and families, I recognized that, as a mother and as a psychotherapist, the core of my philosophy about children is that they need to feel safe and protected. Actually they need to be safe and... Read More »
TOUCHED BY LYME: When a medical problem calls for non-medical help
10
APR
2009
I recently received a phone call from a mom whose two teen-aged sons are terribly ill with Lyme and coinfections. In addition to all the medical and emotional issues her family is dealing with, she’s also concerned about schooling, since one of her sons is too sick even for... Read More »
TOUCHED BY LYME: Lymelife for Dogs
09
APR
2009
There’s a scene in the Lyme documentary Under Our Skin, where somebody demonstrates how to “flag” for ticks. With his trusty long-haired dog trotting through the woods beside him, the man drags a big white cloth alongside the trail, and shows the camera how quickly and easily he... Read More »
ACTION ALERT: FEDERAL BILL NEEDS YOUR HELP
30
MAR
2009
The Lyme and Tick-Borne Diseases Prevention, Education and Research Act of 2009, HR 1179, was introduced into the US House of Representatives by New Jersey Congressman Chris Smith on February 25. The bill authorizes creation of an advisory committee guaranteeing patients a seat... Read More »
TOUCHED BY LYME: A political and medical snake pit
19
MAR
2009
I’m always looking for new ways to explain to people the complex world of Lyme disease. Not only is the illness itself biologically complex, able to manifest in countless different ways, but the history and politics of this particular disease muddy the picture even more. Read More »
