Almost every day, someone will post the following question on one of the many Lyme-related on-line support groups: I'm newly diagnosed (or think I might have Lyme.) How can I find out what I need to know? Read More »
Touched By Lyme
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as Vice-President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME:"Virtual theater party" for Under Our Skin–be there or be square
24
JUN
2009
I don’t know about you all, but I’m terribly disappointed that I live too far away to attend any of the moviehouses showing Under Our Skin this week. After all, the theatrical release of this film is one of the biggest events to hit the Lyme world, ever. So, I’m making up for it... Read More »
TOUCHED BY LYME: Citizen promotion of "Under Our Skin"
18
JUN
2009
The theatrical release of the Lyme documentary "Under Our Skin" is almost upon us. There is still time for you to help fill those theater seats! One member of an on-line support group came up with some creative ideas for getting the word out that just about anybody could do. Read More »
TOUCHED BY LYME: Parenting kids with Lyme–“one day at a time” and a two-track approach
18
JUN
2009
Let's say your family has been through the emotional meat grinder of dealing with a child who has Lyme disease. Then, after what may be years, your child's health significantly improves. How do you return to day-to-day normalcy? How do you deal with the very real fears... Read More »
TOUCHED BY LYME: Is having Lyme-induced MCS a criminal offense?
14
JUN
2009
Some people with Lyme disease develop a host of related problems, like extreme sensitivity to light, sound, and various chemicals in the environment. (This last condition is called multiple chemical sensitivity, or MCS. For people who have it, being around gasoline fumes,... Read More »
TOUCHED BY LYME: Beauty and pain intertwined
10
JUN
2009
ATTACK—A STORY OF LYME DISEASE is a most unusual group of photographs on display in the central California coastal town of Arroyo Grande. The pictures are the work of Cal Poly student photographer Brianna Nosler, who did them as her senior project. Because Brianna is majoring in... Read More »
TOUCHED BY LYME: More about schooling kids with Lyme
02
JUN
2009
My recent blog posting about the educational challenges faced by children with Lyme disease prompted a thoughtful letter from Lyme-literate psychotherapist Sandy Berenbaum. Her years of counseling families dealing with Lyme disease has given her extensive insight into how... Read More »
TOUCHED BY LYME: Fill a theater, change the world….
29
MAY
2009
The long-awaited theatrical release of the Lyme documentary Under Our Skin is almost here. The film opens at New York’s IFC Center on June 19 and at Beverly Hill’s Laemmle Music Hall Theater on June 26. Although other cities are on the list, these first two are of primary... Read More »
TOUCHED BY LYME: Sit right down and write yourself a letter….
20
MAY
2009
Here’s an easy way to help get the word out about Lyme disease. Costs nothing, and virtually anyone can do it. Write a letter to the editor of your local small-to-medium sized paper. (Unfortunately, it’s harder to get them printed in really big newspapers, like the Los Angeles... Read More »
