A mom I know whose whole family has struggled with Lyme disease for over 20 years called me after my recent posting about teenagers with Lyme and said: “More than anything, teenagers with Lyme need you to believe them. So many people—doctors, teachers, school friends—don’t... Read More »
Touched By Lyme
Dorothy Kupcha Leland
This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy Kupcha Leland has a family member with Lyme disease. She is co-leader of a Lyme patients' support group, and is LymeDisease.org's VP for Education and Outreach. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.
TOUCHED BY LYME: When teenagers have Lyme disease
08
FEB
2009
Dealing with Lyme disease and other tick-borne infections is a miserable ordeal at any age, but it offers unique challenges when the person going through it is a teenager. Read More »
TOUCHED BY LYME: Lyme in them thar zip codes
05
FEB
2009
A steady stream of responses has flowed into my email box regarding my previous blog post “No Lyme in (your zip code here).” What follows are quotes from your different emails: Read More »
TOUCHED BY LYME: A whole ’nother ballgame
31
JAN
2009
In the chaotic early days of my daughter’s illness, when we trying to make sense of her bizarre symptoms and the equally bizarre reactions we were getting from the medical establishment, I didn’t want to read about the history and controversy surrounding Lyme disease. I just... Read More »
TOUCHED BY LYME: A roadmap for Lyme disease
27
JAN
2009
When my family and I needed to quickly come up to speed about Lyme disease several years ago, I looked for a book that would take me by the hand and explain all the complex stuff I needed to know. I never found one at the time. I wish I’d had a copy of The Lyme Disease Solution,... Read More »
TOUCHED BY LYME: No Lyme in (your zip code here)
25
JAN
2009
Several years ago when my daughter first came down with mysterious disabling symptoms that no doctor could diagnose, my neighbor said, “Sounds like it could be Lyme disease.” I knew next to nothing about Lyme, but added it to my list of questions for the doctor. Read More »
TOUCHED BY LYME: Like Alice Down the Rabbit Hole
24
JAN
2009
I fell into the alternate reality of Lyme disease four years ago when, seemingly overnight, my teenage daughter became seriously debilitated and none of the medical specialists we took her to could figure out what was wrong. Read More »
