The Kay Hagan TICK Act—aimed at improving the government’s response to Lyme and other tick-borne diseases—was included in the federal appropriations bill passed by Congress this past week. President Trump signed the entire spending package late Friday. The TICK Act is named after... Read More »
IGeneX Introduces Cost-Effective Tests for Lyme Disease and TBRF
20
NOV
2019
IGeneX, a leading tick-borne disease testing lab based in California, is pleased to announce the availability of the new Broad Coverage Ab (BCA) Assays for Lyme disease and Tick-Borne Relapsing Fever (TBRF). The BCA assays are simple and cost-effective tests which give either a... Read More »
Tick-borne Powassan virus claims life of former US Senator Kay Hagan
28
OCT
2019
Former US Senator Kay Hagan, of North Carolina, has died, following a three-year struggle with brain inflammation caused by tick-borne Powassan virus. According to news reports, Hagan contracted the illness in late 2016. Since then, the condition had made it difficult for her to... Read More »
Lyme patients from Czech Republic join coalition, reject IDSA guidelines
25
OCT
2019
A patient group from the Czech Republic has joined the coalition opposing the Infectious Diseases Society of America’s proposed new Lyme guidelines. Borelioza.cz (Lyme Czechia) is the 88th group to join the Ad Hoc Patient and Physician Coalition responding to the IDSA Lyme... Read More »
Donate samples to Lyme Disease Biobank to aid research
16
OCT
2019
By Liz Horn A biobank, also known as a biorepository, is a collection of biological specimens or samples created for medical researchers to study a specific disease or condition. Scientists need blood and tissue samples from people impacted by a disease in order to conduct... Read More »
Lyme Poland joins international coalition rejecting IDSA guidelines
26
SEP
2019
Eighty-seven organizations in 11 countries are now on record as opposing the IDSA’s proposed Lyme disease treatment guidelines. The most recent one to join the Ad Hoc Patient and Physician Coalition is borelioza.org – Lyme Poland. Other countries represented include the US,... Read More »
FDA approves Babesia screening test for donated blood
24
SEP
2019
Roche, a Swiss multinational pharmaceutical company, has received approval from the US Food and Drug Administration for a test to screen donated blood for Babesia. If undetected, Babesia can be fatal in patients receiving blood transfusions from infected donors. The newly... Read More »
31,000+ have called for Shapiro’s removal. HHS doesn’t care.
18
SEP
2019
Last May, LymeDisease.org launched a petition asking for Dr. Eugene Shapiro’s removal from the federal Tick-Borne Disease Working Group (TBDWG). More than 31, 000 people have signed it. We have contacted the Department of Health and Human Services (HHS) many times about... Read More »
Summary of TBD Working Group Sept 12 meeting, in tweets
12
SEP
2019
The federal Tick-Borne Disease Working Group held a web-based meeting on September 12. Members of sub-committees were announced, with progress reports. LymeDisease.org’s Lonnie Marcum live-tweeted the event. Here’s a compendium of what she posted during the meeting. Read More »
LDO achieved Gold level: Committment To Transparency