Is Lyme Like AIDS? and Other Top Stories
The following are the top stories from our Facebook and Twitter feeds in the past week as chosen by you, our followers, through your likes, shares, and retweets.
And the Band Plays On: A New Plague Met With Silence, Denial
HuffPost contributor David Michael Connor compares where we are today in the Lyme Wars to where the AIDS Community was twenty-five years ago when Randy Shilts’ best-selling book And The Band Played On hit bookstores.
FOCUS: Helping doctors learn to treat Lyme and other tick-borne diseases – Maloney
Elizabeth Maloney MD’s guest blog introducing her new project in doctor education.
Feeling Worse In The Heat With Chronic Lyme disease
In time for the summer months, Tired of Lyme’s blog about how patients can deal with heat intolerances.
Profile: Author John Grisham’s Allergy Mystery
The best-selling author’s journey with a medical mystery that was actually linked to ticks.
Fox News Health: The Lyme disease debate: Can the condition be chronic?
An interview with Richard Horowitz, MD.
- June 2, 2016 at 4:33 pm
I was Misdiagnosed I did go to Dr Hirowitz which ended up using my story in his book,I had a back surgery in 2005 I had steroids into my spine for pain management worst thing I did, I ended up in ER high fever,Liver count at 575 which is SUPPER HIGH, so they said Hepatitis B what!I told them I had steroid injection so they did a spinal tap,Normal so what was it they sent me home!i went into surgery when liver count went down,in have NEVER ever been the same, my Lyme was negaitive, quest lab stinks!i felt electric shocks down my leg, weakness in my right foot,right leg was getting weaker, I had pain jumping from shoulder to upper back,My neck, to headaches, to numbness in feet like tow feet filled with cement I watched my walking drag ding my leg a cane, Dr’s ran with MS, I was so off balance like I was drunk!its MS a fancy NY Hospital said!I went on IV Steriods!Then another spinal tap this was feb 2006 while in hospital I felt bad,worst! I then found Dr Richard Horowitz which knew what it was BY MY SYMPTOMS! But he knew what lab to use IgEnex the best lab 17 tubes of blood, see these bugs don’t like warmth being in your blood, but I came back with Babisia, Ehrlichia.it was out of control so I did mylari meds and antibiotics but I needed it to hit central nervous system,cause my mind forgot things,didn’t understand things!I was a mess!IV Rocephin twice a day with in 6 weeks I was walking out my cane,the cement in my knees,back feet eased up, but 9 weeks my gallbladder had an attack so I had to stop but by then I was WALKING AGAIN!
Now I was still never 100Percent got bite again, again we are loaded in NY State!
I felt the fusion , was the problem BUT NO ONE LISTENED the MRI showed the placement was fine!Then,I did a private metal test through a metal lab,it came back HIGH for Titainum nickel the two things IN these rods and screws in my lumber L 4-5 level, unheard of doctors said nothing you can do, well I PRAYED I need a good neruosurgeon, after a puppy I saved died his name was Simon, I was obsessed with Simon, why why am I thinking of Simon,I then google a dr. Neruosurgeon a Dr Simon came up in Greenhich CT.i felt it was a sign. I went he put numbing injection around the L4-5 fusion rods and screws.
He said I can take this out usually takes an hour!Mine 2-1/2 hours why they took this off the market the screws were so tight locking in it broke the screw gun!no one told me again at a fancy NY Hospital for specail surgery!!!!NO ONE TOLD ME! I suffered 8 years with bad rods and screws with locks. So we kept them also Dr. SImon did a biopsy of the muscle tissues around the screws, the test came back POSITIVE for Borrillis ( Lyme disease ) in my DNA. DR Horowitz said that is SO rare. I should have gone IV Rocephin stupid me I didn’t,the oral antibiotics didn’t work by this time again I lost my muscles in right leg like ALS, the muscle lose was servere.i lost the movement to walk,leg foot hung I couldn’t lift it up, the knee pain was so BAD!my neck cracks,pain ,pain behind my eyes, shoulder joint pain, upper thigh muscle pain.i was SO SO Upset,then I lost 2 family members and my dog all at once and I feel apart!I put myself in a nursing home with a rehab .
I lost family member my dog a nightmare I am on cerftin now let’s see how this works, our Governement needs to step up, I have NO FAITH IN POLITICANS all smiles,laughs pandering to us fools! call CDC call ask the, for help,for doctors,good luck the fight goes on!and keep Praying they CURE Chronic Lyme disease!
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