Leave a lasting legacy that will help raise awareness and fund research that can improve Lyme disease patients’ lives.
It is a wonderful way to leave a lasting legacy and help LymeDisease.org continue to pursue equity for our Lyme patient population. LymeDisease.org is the oldest Lyme organization and the only one focused on patient advocacy, treatments, legislation, insurance issues and our patient centered research project, the MyLymeData patient registry and research platform. A legacy gift will help us to continue to fight for patient’s rights since the battle is far from over.
There are several ways you can leave a lasting legacy that will help benefit the Lyme patient community. What ever vehicle you choose, your legacy funds will be used judiciously to further LymeDisease.org’s patient centered mission. Your gift can be given to the general fund or it can also be a restricted research donation to fund MyLymeData or other research projects.
Learn more about the MyLymeData patient registry and research project.
Before making a legacy donation, we suggest that you consult your tax advisor or attorney to make the best choice for your situation.
Including LymeDisease.org in your will or trust can promote a lasting legacy that allows us to continue working for patients for many years in the future. You can do this easily by either setting aside a specific dollar amount, percentage of your estate, or any assets remaining after your family has been provided for.
Standard language would be: “I give, devise and bequeath to the LymeDisease.org, a nonprofit corporation of the State of California located at PO Box 716, San Ramon, CA 94583 (Tax ID number 68-0214101) $ ________ (OR __% of my estate OR the residue of my estate.”)
To give through your retirement funds, insurance policies, or bank account, generally all that is needed is to designate LymeDisease.org as the beneficiary of the account. Your financial institution should be able to provide you with a beneficiary designation form for this.
Please advise us if you make a bequest or designate LymeDisease.org as a beneficiary so that we can ensure that you have updated contact information over time.
Using an IRA to make a charitable donation can help lower a tax bill and help a worthy cause. Distributions must be made directly to the charity, not to the owner or beneficiary. All distribution checks need to be made payable to the charity or they will be counted as taxable distributions.
Talk to your IRA custodian about how to make this happen and be sure to leave sufficient time for the funds to reach the charity.
LymeDisease.org seeks to make the patient voice stronger, to support patient-centered research, and to create a future where Lyme patients can receive the treatments they need to get well. Its focus is on large scale science-based advocacy, communications and big data research.
Founded in 1989, it is one of the oldest, largest, and most trusted sources of patient information on Lyme disease, drawing millions of unique website visitors a year. Its MyLymeData patient registry and research platform has enrolled over 14,000 patients and is among the top 5% of patient-led registries in the nation. Its communications network distributes resources and educates the public about the science of tick-borne diseases via website content, blogs, social media, and an online journal, the Lyme Times.
You can also donate to LymeDisease.org by clicking here or through the mail. Please make checks payable to LymeDisease.org and mail them to LymeDisease.org, PO Box 716, San Ramon, CA 94583.
If you have any questions, please call Barbara Barsocchini at 310-456-9931 (PST daytime only).