You searched for {search_term_string}","query-input":"required | Page 83 of 136

Dreams derailed by lack of Lyme diagnosis and treatment

JAN

2016

...ces. That’s also why I’ve signed up for MyLymeData. This patient-powered research project pools information from many people with Lyme—about their symptoms and what treatments have helped or not helped. That kind of information has... Read More »

IDSA Lyme guidelines removed from NGC; ILADS guidelines still there

FEB

2016

...uidelines had passed their five-year mark and did not comply with the more stringent requirements. The IDSA guidelines are currently undergoing revision. The IDSA’s guideline revision process was publicly posted for comment in May 2015.... Read More »

LYMEPOLICYWONK: Embers Monkey Trials Part 4. Lab Tests Fail to Detect Lyme Disease.

FEB

2012

...ely reflected active infection. It was believed that the C6 might permit researchers to determine whether treatment cleared infection. However, the study concludes: “Reliable procedures to determine that infection has been cleared from Lyme... Read More »

LYMEPOLICYWONK: IDSA says revision of Lyme disease guidelines expected to take 2-5 Years

APR

2016

...akes time to actually review evidence using the GRADE process—which is now required by the Institute of Medicine (IOM). When I sat on the guidelines panel for the International Lyme and Associated Diseases Society (ILADS), we... Read More »

LYMEPOLICYWONK: Patient representation on the revised IDSA Lyme guideline panel: Is it real or token?

APR

2016

...Lyme disease? Is there a “patient/consumer organization representative” as required by the IOM? Anything less is tokenism. We don’t know the answer to any of these questions, because the IDSA does not tell us how... Read More »