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What people with Lyme can learn from the disability community

FEB

2018

...of disability. [3] Gold, G. The Social Context of Privately Sponsored Long Term Disability: Research in a Neglected Domain of Disabilities Studies. York U. Dept. of Anthropology. [4] Pinder, R. Sick-but-fit or Fit-but-sick? Ambiguity... Read More »

Watch replay of NASEM conference on long-haul diseases now

JUL

2023

...& A 3-Day 2 – Session 6 from The National Academies on Vimeo. Session 6: Research innovation and required infrastructures Moderator: Tim Endy, CEPI Diagnostic journeys of Long COVID patients Linda Geng, Stanford University... Read More »

LymeX Diagnostics Prize announces Phase 3 winners

JAN

2025

...t and validation, regulatory review and compliance, vector-borne disease research, and commercialization — evaluated eligible submissions according to official Phase 3 evaluation criteria. Each team submitted a concept paper that detailed how... Read More »

Listen to re-play of KZYX radio’s MyLymeData interview

FEB

2016

...On February 1, 2016, Lorraine Johnson, CEO of LymeDisease.org, explained details of the MyLymeData project on radio station KZYX. Listen to the interview here. My Lyme Data LBJ Radio - Lorraine Johnson Update Required To play the... Read More »

LYMEPOLICYWONK: Whose interests is the FDA protecting? Not Lyme patients, apparently

AUG

2014

...r the CDC two-tiered lab test recommendations for Lyme disease. However, researchers have found that the ELISA is too insensitive to be used for screening: “Our data indicated that the sensitivity and specificity of the currently used tests for... Read More »