Focus – Opinions and Features

  This is one of a series of guest blogs by people who have enrolled in MyLymeData. By Silver Feldman When I was 13 years old and bedbound with pain, I made out a will—because I was sure I was dying. I had gone from being a healthy young woman to being barely able to move. I... Read More »

The latest issue of The Lyme Times looks at Lyme disease in the national scientific agenda. Our cover story explores “the democratization of science,” including the AAAS’s recent national session on the “wicked problem” of Lyme disease. Other topics... Read More »

  This is the first of a series of guest blogs by people who have enrolled in MyLymeData. By Sherrill Franklin My Lyme journey began in 2008. Ironically, a few days after placing tick repellent in our woods, I saw an engorged tick embedded in my hip. Having struggled through... Read More »

LymeDisease.org today announced the launch of MyLymeData, a first-of-its-kind national patient-powered research project aimed at improving the quality of care for Lyme disease patients. The MyLymeData registry allows patients to pool their health information through a secure... Read More »

LymeDisease.org will soon launch a patient-powered research project called MyLymeData. It promises to be the largest study of chronic Lyme patients ever. Our latest issue of The Lyme Times explains all about it. You can read this issue online (for free) by clicking here. (Note:... Read More »

by Dr. Andrew Pugliese   A 15-year-old young lady came to see me last year with quite an interesting story. Six months prior to her visit, she was at summer camp, when she developed a fever, chills, myalgia and arthralgia. The patient also has a history of cranio-pharyngeal... Read More »

­by Daniel J. Cameron, MD, MPH “Minds are like parachutes. They only function when open.” This particular quote by Thomas Dewar came to mind after reading an article, Chronic Lyme Disease (1) in the June issue of Infectious Disease Clinics of North America. In it, the author... Read More »

New York State Senator Sue Serino, Chair of the NYS Senate Taskforce on Lyme and Tick-Borne Diseases, held a two-four community forum about Lyme disease in Hyde Park on June 30. On the following video, you can listen and learn from speakers from the Cary Institute, Dutchess... Read More »

This press release from the Lyme Disease Association, provides important links and background information about the proposed bill: The Energy & Commerce Committee (E&C) passed The 21st Century Cures Act, HR 6, by a vote of 51-0, on May 21, 2015. Chairman Fred Upton (MI)... Read More »