Your voice has been heard–Wormser is off the federal Lyme panel
If you go to the US Department of Health and Human Services website, you’ll see a beautiful thing. Dr. Gary Wormser’s name has been removed from the list of members of the Tick-Borne Diseases Working Group.
We await word from HHS about who may be named to replace him. Presumably that will come this week, since the group’s first meeting in Washington DC is scheduled for Monday, December 11.
Thanks to more than 10,000 people who have signed our petition in the last few days. LymeDisease.org protested Wormser’s participation, because of his flagrant financial conflicts of interest.
More details as they become available.
- December 5, 2017 at 2:47 pm
- December 5, 2017 at 2:50 pm
- December 5, 2017 at 2:54 pm
A doctor affiliated with ILADS.org should have a voice in this matter. ( Maybe one of them is.) My entire family is infected and they have been the ones who have helped us. We are so thankful for them. They diagnosed us and are treating us. Many of them have Lyme so they know what to do. They should all be able to bill insurance and if they prescribe natural treatments it should be covered by insurance. I am hoping the young lady suing the government about canibus oil, being the only thing to help her with her seizures, will be a push in the right direction, for the lyme community too. Sometimes things other than pharmaceuticals are the most helpful, but they aren’t cheap. The doctor should also be guiding this an nobody can afford to see them if they can’t take insurance. I think somewhere on the East coast Naturopathic Doctors are covered by insurance. They should be always! The Doctors we see are Osteopaths and thank goodness they can prescribe drugs and natural remedies. Somebody has to stand out and stand up and help out. Thank God for them. I hope somebody in this realm can help on the board.
- December 5, 2017 at 3:00 pm
Progress is all we need and want. AMEN!
- December 5, 2017 at 3:14 pm
HALLELUAH!! THANK YOU GOD!! thanks for this wonderful news; crossing off my fingers for an OPEN-MINDED, person who doesn’t have all the financial conflicts of interest & doesn’t testify against our ILADS !!!
Betty Gordon, Iowa activist & letter writer/petition signer
- December 5, 2017 at 3:39 pm
- December 5, 2017 at 3:48 pm
- December 5, 2017 at 4:05 pm
Praise the Lord let’s pray for positive results and answers
- December 5, 2017 at 4:07 pm
WAHOOO!! It’s not everyday that our voices are heard – feels pretty darn good.
- December 5, 2017 at 4:14 pm
- December 5, 2017 at 4:36 pm
Thanks to all who wrote to protest his nomination!
- December 5, 2017 at 5:05 pm
Whooohooo! Good riddance 👍🏼
- December 5, 2017 at 5:10 pm
Nice to see our voices were heard somewhere!
- December 5, 2017 at 5:11 pm
“One small step for mankind”. finally a little good news.
- December 5, 2017 at 5:22 pm
so so so so happy
- December 5, 2017 at 5:48 pm
- December 5, 2017 at 6:23 pm
Very good news!!!!
- December 5, 2017 at 6:50 pm
Our collective efforts yield results! Go, us!
- December 5, 2017 at 8:15 pm
Thank you Lord! God is good!!! Thank you to all that helped make this happen! Having Chronic Lyme disease myself going on 5 years, when I read about Wormser it made me sick to my stomach! Almost had tears in my eyes when I saw this as I signed the petition last night and it is just another step to our justice and victory! Thank you Lymedisease.org for making this happen!
- December 5, 2017 at 9:05 pm
So happy about this!
- December 5, 2017 at 9:49 pm
Thanks for all your work on this, Dorothy, and thanks for keeping us updated. May the great news continue…
- December 5, 2017 at 10:51 pm
- December 5, 2017 at 11:16 pm
FANTASTIC! WE ALL WORKED TOGETHER TO ACCOMPLISH THIS!
- December 6, 2017 at 5:03 am
Praise God for small favors.
- December 6, 2017 at 5:13 am
- December 6, 2017 at 5:55 am
Thank u everyone who signed !! When we join forces , and get the word out we win!! Let’s keep the wins going in our favor!!
- December 6, 2017 at 6:18 am
Where and to whom should we send nice thank u note or notes for helping us wirh this win?? Thank u!
- December 6, 2017 at 8:14 am
Since Wormser is an ID, I would imagine the group needs to maintain its balance by replacing him with another ID. They should include an infectious disease specialist who refused to turn their back on their patients, and who was forced to shut down his practice by the CDC and insurance companies, as well as shunned and villified by their peers at the IDSA.
- December 6, 2017 at 8:15 am
Thank you LymeOrg for all your hard work. When we join together we can win this war!
- December 6, 2017 at 8:17 am
Joe Burrascano and Daniel Jaller are two excellent suggestions for possible replacements.
- December 6, 2017 at 9:54 am
Good work!!! However, remember “The only difference between the big shot and the little shot is the big shot is just a little shot who kept shooting.” So we made one shot for Lyme patients. This was a concerted effort for one little shot. If anyone can think of another little shot we can do together, then we have a chance at the really big shot for Lyme patients, all of us. Excellent little shot.
- December 6, 2017 at 10:55 am
I strongly urge that Lymedisease.org advocate for Wormser’s replacement to be Dr. Marina E. Eremeeva, PHD, former member of the CDC Rickettsia Zoonoses Branch and now
Professor, Department of Epidemiology and Environmental Health Sciences, Jiann-Ping Hsu College of Public Health, Georgia Southern University. The Tick-Borne Disease Working Group needs a well published research scientist with a strong international following, otherwise it is mearly a panel of lobbyists and investors seeking financial gain from vector-borne epidemics they are attempting to control.
- December 6, 2017 at 1:23 pm
YAY! He brought nothing good to the table!
- December 6, 2017 at 3:17 pm
Thank you Dorothy and all those at Lymedisease.org and all who signed the petition for doing this. I think in my ten years of advocacy this is the biggest thing I have ever seen happen!
- December 7, 2017 at 7:28 am
Thank goodness! This is one small step in the proper direction! Tick born disease has changed my life in multiple negative ways. I recently had to leave my job (due to chronically feeling lousy) and I’m uncertain how I will afford my medical care.
- December 7, 2017 at 6:51 pm
How satisfying! I signed the petition and shared it on Facebook, where several of my friends followed suit.
- December 16, 2017 at 6:52 pm
Awesome! About time! Now we just need to work on removing a few more crooked figureheads involved,……. And remember friends when WE win the doctors & hospitals who shrugged us, will be the first to jump on the treatment train to help us, their business’ will depend on it!
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