...but after lengthy treatment managed to get a GED and attend college. Long-term treatment is getting children out of bed and out of their wheelchairs. The CDC should quit endorsing the ELISA test. It misses far too many cases... Read More »
Search Results.
{search_term_string}","query-input":"requiredLYMEPOLICYWONK: Growing Number Of Chronic Lyme Patients—Still No Government Action Plan?
11
JUL
2015
...s 163(2): 311-318. Shadick, N. A., C. B. Phillips, et al. (1994) “The long-term clinical outcomes of Lyme disease. A population-based retrospective cohort study.” Ann Intern Med 121, 560-567. Shadick, N. A., C. B.... Read More »
Lorraine Johnson invited to White House citizen science forum
30
SEP
2015
...sory Panel of PCORI as well. Johnson says the promise of patient-powered research and big data are particularly important for patients with Lyme disease. “This type of research has only recently become possible,” she says. “By... Read More »
TOUCHED BY LYME: Yes, the IDSA noticed us in San Diego
11
OCT
2015
...e the Infectious Diseases Society of America’s annual conference. Our long-term goal remains the revision of the IDSA’s odious guidelines, which make it so difficult for people with Lyme disease to get the medical... Read More »
TOUCHED BY LYME: An “evidence-based” definition of chronic Lyme disease
17
DEC
2019
...sion: This evidence‐based definition of chronic Lyme disease clarifies the term’s meaning and the literature review validates that chronic and ongoing Bbsl infections can result in chronic disease. Use of this CLD definition... Read More »
LDO achieved Gold level: Committment To Transparency