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COVID-19 and Lyme Disease Survey

JUN

2020

...to the forefront. Learn More Support MyLymeData Your support helps fund research that matters to patients. Our research committee includes scientists, physicians and patients working together to determine and fund patient-centered Lyme disease... Read More »

TOUCHED BY LYME: "How many people will have to suffer before our society does something?"

JUN

2010

...lephone conference call, which allowed Lyme patients and advocates to give input. My name is Sylviane Schwarz and I am the president of Humboldt Lyme Awareness Group in Humboldt County, Northern California–a high risk and... Read More »

TOUCHED BY LYME: IDSA learns what it means to “go viral” on Facebook

JAN

2012

...Up until now, IDSA has done everything possible to exclude patient voices, input from doctors who treat chronic Lyme, and information from legitimate Lyme researchers who have discovered information about Lyme that the IDSA finds... Read More »

NEWS: Real lives. Real stories. From the IDSA Lyme survey.

APR

2015

But it chose to shut out meaningful input from actual Lyme patients. So, we designed a survey to collect patient views. More than 6100 people responded. But you didn’t just answer the questions. You also told us your stories. Many... Read More »

Pat Smith, indefatigable Lyme advocate, has passed away

AUG

2024

...e efforts to raise funds for researchers nationally. The LDA awarded 127 research grants – research that was acknowledged in 62 scientific journals. She organized 22 scientific conferences, offering CME credits for physicians, most sponsored... Read More »