NEWS: Real lives. Real stories. From the IDSA Lyme survey.
The IDSA’s Lyme review panel is supposed to consider the “patient perspective.”
But it chose to shut out meaningful input from actual Lyme patients. So, we designed a survey to collect patient views. More than 6100 people responded. But you didn’t just answer the questions. You also told us your stories.
Many of those stories, along with facts and figures from the survey, have been compiled into one document. We’re sending it to the IDSA, as well as health officials, lawmakers and journalists.