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Watch replay of NASEM workshop on “Lyme IACI”

AUG

2024

...JOHNSON Chief Executive Officer LymeDisease.org Patient participation in research and data collection WENDY ADAMS Research Grant Director Bay Area Lyme Foundation Bridging between funder and patient priorities TIMOTHY SELLATI Chief Scientific Officer... Read More »

LYMEPOLICYWONK: Senators Request Removal of IDSA Lyme Guidelines from National Guidelines Clearinghouse

FEB

2012

...at the guidance, as published, is current with available evidenced-based research. We urge you to remove the guidelines in question, and instruct IDSA to address all potential revisions immediately, in order to satisfy the NGC’s requirements... Read More »

Patients Please Help Us Pass This Bill!

APR

2016

...’s bill, S. 1503, Lyme and Tick-Borne Disease Prevention, Education, and Research Act of 2015, to pass. It will only pass if enough people affected by Lyme write and call their legislators. So far several thousand have used our Voter Voice tool... Read More »

Thanksgiving in the Lyme world, 2015

NOV

2015

...submitted the results during the IDSA’s public comment period, along with input from 87 Lyme advocacy groups. Click here to read our “Real Lives, Real Stories” report. MyLymeData More than 1000 people... Read More »

Bias and group-think contribute to faulty treatment of Lyme disease patients

JUL

2020

...omment on articles indexed in the agency’s database of biomedical literature.] Ensure that the CDC-controlled curriculum development team represents the broad scientific perspective on persistent Lyme disease. Merely seeking stakeholder... Read More »