...tients could not find or access adequate medical care, thus suffering long term ailments that could have been prevented- which is a true tragedy. Creating an accurate method for testing, educating healthcare providers, finding a... Read More »
Search Results.
{search_term_string}","query-input":"requiredHelping our child through Lyme disease shouldn’t be this hard
24
AUG
2020
...disease is not going away. Far from it—it continues to spread. Much more research is needed about testing, symptoms, antibody production and treatment. It’s why further education and training is needed for doctors across the country. In... Read More »
Jesse Ruben’s “Monster” tells the story Lyme patients know all too well
26
SEP
2025
...en-song collection explores themes of mental health, chronic illness, long-term relationships, and the essential role of community in helping us heal and thrive. Jesse Ruben’s journey—from misdiagnosis and despair to... Read More »
LYME SCI: Intersection of Lyme and COVID, plus honoring Neil Spector
14
SEP
2020
...isease.org and principal investigator of MyLymeData, our patient powered research project with over 13,000 participants. MyLymeData, launched in 2015, is already compiling data in a way that researchers and patients can learn from. During her... Read More »
Would my son have his Lyme diagnosis without my mother’s instinct?
30
SEP
2020
...es from the National Institute for Health and Care Excellence admit that research is lacking and the evidence base is weak. Current testing harms patients “One thing worse than no test is a bad test,” said Chris Witty, the chief medical... Read More »
LDO achieved Gold level: Committment To Transparency