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TOUCHED BY LYME: TBD Working Group and FACA’s open meeting rules

JUL

2020

...sically, they were looking at what makes it so hard for patients with long-term Lyme disease to get appropriately diagnosed and treated. After lots of research and discussion, the subcommittee prepared a 75-page report with 45 pages... Read More »

Lyme patients need tests, educated doctors, and affordable treatment

JUL

2020

...tients could not find or access adequate medical care, thus suffering long term ailments that could have been prevented- which is a true tragedy. Creating an accurate method for testing, educating healthcare providers, finding a... Read More »

Helping our child through Lyme disease shouldn’t be this hard

AUG

2020

...disease is not going away. Far from it—it continues to spread. Much more research is needed about testing, symptoms, antibody production and treatment. It’s why further education and training is needed for doctors across the country. In... Read More »

Jesse Ruben’s “Monster” tells the story Lyme patients know all too well

SEP

2025

...en-song collection explores themes of mental health, chronic illness, long-term relationships, and the essential role of community in helping us heal and thrive. Jesse Ruben’s journey—from misdiagnosis and despair to... Read More »

LYME SCI: Intersection of Lyme and COVID, plus honoring Neil Spector

SEP

2020

...isease.org and principal investigator of MyLymeData, our patient powered research project with over 13,000 participants. MyLymeData, launched in 2015, is already compiling data in a way that researchers and patients can learn from. During her... Read More »