LymeDisease.org asked chronic Lyme patients the same "quality of life" questions the CDC asks about other chronic diseases. Nobody had ever done that before. Read More »
LYMEPOLICYWONK: Survey Results Published! Chronic Lyme Patients Suffer Poor Quality of Life and High Rates of Disability and Unemployment
27
MAR
2014
LDo's most recent survey of over 3,000 patients with chronic Lyme disease was published today by PeerJ. Although the Centers for Disease Control (CDC) recently increased the number of Lyme disease cases in the US from 30,000 to 300,000, little is known about how chronic Lyme... Read More »
NEWS: Recent study suggests that Lyme disease can be sexually transmitted
25
JAN
2014
Notes one researcher: "There is always some risk of getting Lyme disease from a tick bite in the woods. But there may be a bigger risk of getting Lyme disease in the bedroom.” Read More »
LYMEPOLICYWONK: Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
03
JAN
2014
PLOS Pathogens just published the most recent commentary by Dr. Stricker and me on Lyme disease calling for a Manhattan Project effort to seriously tackle this debilitating illness in light of the CDC's increase in annual incidence from 30,000 to 300,000. An excerpt and a link... Read More »
LYMEPOLICYWONK: Lyme Vaccinations: Safety First
17
DEC
2013
Dr. Stricker and I published a letter to the editor on Lyme vaccines in Lancet. The letter responds to an article by employees of Baxter, which has a vaccine in development. The article by Baxter employees in support of a new vaccine was published with an editorial by Dr.... Read More »
Thanksgiving in the Lyme World, 2013
26
NOV
2013
Along with new and continuing challenges for the Lyme community, there is also much to be grateful for. Here's our Thanksgiving gratitude list. Read More »
LYMEPOLICYWONK: MA insurance bill hearing–how insurers cut costs at the expense of patients
14
NOV
2013
Yesterday, patient advocates testified before the Joint Committee on Financial Services for a bill (H. 989) that would require insurance companies to cover antibiotic treatment for Lyme as prescribed by a physician. LymeDisease.org submitted a chart book as testimony. Drawing on... Read More »
LYMEPOLICYWONK: Is an ounce of prevention worth a pound of cure? Or is it too little too late for those who are sick today?
11
NOV
2013
When the CDC increased its surveillance numbers from 30,000 to 300,000, they said the increased case numbers meant we needed to do more about prevention and their emphasis is on avoiding the tick bite. But is prevention in the form of tucking your pants in on the hike, enough?... Read More »
LYMEPOLICYWONK: Annual Lyme costs now top $3.1 billion—It’s time to wake up!
04
NOV
2013
The CDC is likely to officially update its cost estimates for Lyme disease based on the new case numbers, but in the meantime, I've pulled together some rough estimates. The annual cost of Lyme disease in the US in 2002 was estimated at $203 million by Dr. Zhang of the CDC. ... Read More »
LDO achieved Gold level: Committment To Transparency