News

MyLymeData—the patient-powered project that allows people to pool their Lyme experiences to help further medical research—needs you to help spread the word. We currently have over 4,000 people signed up and we’d like to reach at least 10,000. If you have a website, e-newsletter,... Read More »

Press release, April 20, 2016: Despite scientific studies, the CDC and IDSA dismiss any existence of chronic Lyme disease. Kenneth B. Liegner, M.D. has compiled into a single volume a compelling argument that the disease does exist in his book, “In the Crucible of Chronic Lyme... Read More »

Patient representation on the revised IDSA guideline panel: Is it real or token? The IDSA guideline development process is a big deal—without making sure the process is fair, there is no real chance for change in the guidelines. And patients need change.  We need to be at the... Read More »

Dr. Steven Phillips, of ILADS, gives much-needed perspective and information about Lyme disease  on Fox5NY, April 1, 2016: Read More »

12-year-old Julia Bruzzese of New York, in a wheelchair from Lyme disease, was thrust into the national spotlight in September, when Pope Francis picked her out of an airport crowd and blessed her. Here are updates to her story from several  media outlets.      ... Read More »

This is one of a series of guest blogs by people who have enrolled in MyLymeData. by Dana Parish A July 2014 wedding on Long Beach Island, New Jersey was the start of my nightmare. It was a beautiful weekend filled with love for two of our dearest friends who were, after 14 years... Read More »

Lymedisease.org CEO, Lorraine Johnson was recently interviewed about MyLymeData by reporter Richard Knox of WBUR-Boston, an NPR affiliate, for an article about Big Data and Lyme disease. Along with Johnson, John Aucott, MD, director of the Lyme Disease Clinical Research Center at... Read More »

  Press release, February 13, 2016: Over the past 40 years, little has been learned about how to prevent, diagnose and effectively treat one of the most complex infectious diseases in the country — chronic Lyme disease. But now, big data tools like patient registries... Read More »

  Press release from the National Institute of Standards and Technology (NIST), Feb. 12, 2016: When it comes to early diagnosis of Lyme disease, the insidious tick-borne illness that afflicts about 300,000 Americans annually, finding the proverbial needle in the haystack... Read More »