TOUCHED BY LYME: Need a crash course in Lyme disease? Start here.
Updated Lyme disease information and resources list.
Lyme Disease Information Links
www.lymedisease.org –the website of LymeDisease.org (formerly the California Lyme Disease Association) gives info about ticks, Lyme disease, co-infections, prevention, risk maps, downloadable brochures, blogs, news and events.
In addition to its website, LymeDisease.org also publishes a quarterly journal, The Lyme Times, distributed free to members. (Click here to join.) We post Lyme-related news on Facebook and Twitter and maintain a network of state-based on-line support groups. Sign up for our free email newsletters.
ILADS–International Lyme and Associated Diseases Society. Professional organization for doctors who treat Lyme disease. Lots of information about Lyme, including videos of educational presentations about Lyme-related topics and downloadable brochures.
LDA–Lyme Disease Association. Lyme information, doctor referral site, annual Lyme scientific conference.
Neurological manifestations of Lyme.
Gastrointestinal manifestations of Lyme.
Psychiatric manifestations of Lyme.
Lyme and autism
Recommended books, articles and films:
Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic disease, by Dr. Richard Horowitz. Read first chapter of the book free on-line.
The Beginner’s Guide to Lyme Disease, by Nicola McFadzean, ND.
The Lyme Disease Solution, by Dr. Kenneth Singleton
The Lyme Diet, by Dr. Nicola McFadzean. What to eat while healing from Lyme.
Cure Unknown: Inside the Lyme Epidemic, by Pamela Weintraub. Excellent explanation of the scientific, medical and political turmoil surrounding Lyme disease.
Poughkeepsie Journal’s investigative series about Lyme disease. Highly recommended.
Watch “Real Housewife” Yolanda Foster‘s 11-minute speech about Lyme disease. A stirring tribute to the struggle of Lyme patients everywhere.
Under Our Skin, award-winning Lyme documentary film. Available for free viewing at Hulu.com.
Putting Lyme Behind You, 2-DVD set. Dr. Burrascano lecture, along with a panel of other Lyme-treating doctors.
LymeTAP.com–Lyme Testing Access Program. Financial assistance for Lyme diagnostic testing. (US residents only.)
LymeSAVERS.com–Financial assistance for Canadians with Lyme disease.
Info about how to save money on medical lab tests.
Needymeds.com–Financial assistance for obtaining medication. Click here for a YouTube video that explains the process.
Lymelight Foundation–financial assistance for Lyme treatment for patients ages 3-25.
LymeAid4Kids–Financial assistance for Lyme treatment for those under age 21.
Free on-line book, Infusing for Lymies, lots of information about PICC lines and IV drugs.
Filing for disability benefits when you have Lyme.
Financial assistance not related to Lyme disease:
Lesko.com–Information about a wide variety of free and reduced-cost health services.
Benefits.gov–State-by-state listing of benefit programs such as food stamps, energy assistance, Medicaid, etc.
Are you eligible for food stamps (SNAP–Supplemental Nutrition Assistance Program)
Getting by on a limited budget–survival guide put together by LymeUnderground website.
Outside of the United States:
Lyme Disease Action (UK)
Karl McManus Foundation (Australia)
Association Luxembourgeoise Borréliose de Lyme (Luxembourg)
TOUCHED BY LYME is written by Dorothy Kupcha Leland, LymeDisease.org’s VP for Education and Outreach. Contact her at firstname.lastname@example.org.