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LYMEPOLICYWONK: IOM Workshop–Who are They, What is It, When, Where, and Why Does it Matter?

SEP

2010

...ic views on Lyme disease, and provide a forum for public participation and input from individuals with Lyme disease. When:A workshop will be held October 11-12, 2010. Where: Washington Plaza Hotel located at 10 Thomas Circle, NW, in... Read More »

TOUCHED BY LYME: Those controlled studies cited by the IDSA Lyme guidelines included only 221 patients

JUN

2010

...tion gaps that could inform further investigation. At a minimum, we need research to determine whether existing serology lab tests are adequate or not before better diagnostic tests can be developed and better treatment protocols devised, especially... Read More »

LYMEPOLICYWONK: IOM LIVE BLOG PART III Public Comment

APR

2010

...phasized the need to listen to new researchers and not simply follow the research by a handful of researchers who have controlled the disease. Helene Jargensen, Lyme Patient and author of Sick and Tired (Left copies of written testimony). Analyzed... Read More »

LYMEPOLICYWONK: Pat Smith’s Comment before IOM

APR

2010

...s that exist on selection and interpretation of existent scientific Lyme research. Several individuals are clearly associated with entities that hold preconceived ideas about Lyme, especially chronic Lyme. LDA and other organizations sent IOM... Read More »

TOUCHED BY LYME: Six apps to simplify life with Lyme

SEP

2015

...year, I’ve used it to track my heart rate and my weight. It’s easy to just input the numbers and then look at the data points in graph format. 5) Paperless Only runs on Apple. Although this app... Read More »