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Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

How new treatment approaches help chronic Lyme patients

21
JUN
2022
Pamela Weintraub is a science journalist, Lyme disease survivor, and author of the groundbreaking book Cure Unknown: Inside the Lyme Epidemic. I highly recommend you read her most recent article, entitled “A New Look at Chronic Lyme.” You can find it online at... Read More »

He bucked the establishment to help kids recover from Lyme disease

08
JUN
2022
There has been an outpouring of emotion in the wake of the recent death of Lyme pediatrician Dr. Charles Ray Jones. Many of those who knew him—parents, children, advocates, and medical colleagues—have posted touching tributes on social media and online support groups. But people... Read More »

TOUCHED BY LYME: Avoiding a heart transplant by treating Lyme disease

16
MAY
2022
Dr. Steven Phillips is a well-known Lyme specialist and co-author of the book: Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again. He also produces an email newsletter called Zerospin, where he takes a deep look at various health-related matters.... Read More »

TOUCHED BY LYME: #TickCheckChallenge teaches and inspires

09
MAY
2022
Last year, PA Lyme Resource Network and Invisible International came up with a real winner of a way to encourage kids to do tick checks. In fact, in 2021, their #TickCheckChallenge won the first-ever Health and Human Services LymeX Healthathon. They have re-launched the challenge... Read More »

TOUCHED BY LYME: Remembering a Lyme disease pioneer

22
APR
2022
This week, our community has mourned the loss of Nick Harris, PhD, a pioneer in the field of Lyme disease testing and a staunch supporter of Lyme patients throughout the world. If you have ever had an IGeneX test or have been treated by an ILADS-affiliated physician–you... Read More »

TOUCHED BY LYME: “Ehrlichia,” Rhapsody in Discomfort #6

11
APR
2022
Dan Flanagan is a professional violinist and composer based in Northern California. He takes pleasure in creating music for solo violins and small ensembles. He often pairs his compositions with paintings from artists who inspire him—sort of a multi-media artistic approach, if... Read More »

TOUCHED BY LYME: “Now is not the time for the state to cheap on tick-borne illnesses”

03
APR
2022
The Daily Gazette, a locally owned newspaper in Schenechtady, New York, had strong words for state lawmakers in a Sunday April 3 editorial. The headline says it all: “Now is not the time for the state to cheap on tick-borne illness.” The legislature was supposed to... Read More »

TOUCHED BY LYME: New program helps pay for internet access

25
MAR
2022
One of the most important things a Lyme patient needs is internet access. Probably more than most diseases, in Lyme it’s essential to do your own research regarding your symptoms, potential treatments and to track down a doctor willing to help you. However, for many households,... Read More »

TOUCHED BY LYME: Rehabilitating your Lyme-impaired vision

22
MAR
2022
Dr. William V. Padula is a pioneer in the field of how Lyme and other tick-borne diseases can affect your vision. He’s worked with patients from all over the world. Many of them had no idea that Lyme and TBDs were at the root of their deteriorating eyesight. Though treating the... Read More »
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