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Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

TOUCHED BY LYME: Register for Lyme Fly-in by February 10

03
FEB
2022
I’m often asked what’s the best way to get started as a Lyme advocate. And one of my answers is always “Sign up for the virtual Lyme Fly-in.” It’s an opportunity for you to speak directly with the offices of your elected representatives in Congress—via... Read More »

TOUCHED BY LYME: Who will represent YOUR state? Maybe you?

27
JAN
2022
More than 200 Lyme advocates from throughout the United States have already signed up for this year’s virtual Lyme Fly-in, scheduled for February 22-23. But there’s room for more, especially from the following underrepresented areas: Alaska, Alabama, Arkansas, Connecticut,... Read More »

TOUCHED BY LYME: The blogs you cared about most in 2021

07
JAN
2022
The team at LymeDisease.org strives to keep you up-to-date on information relevant to the Lyme community. Throughout the year, we regularly post blogs on our website that include news, analysis and personal stories. We deliver them to you in a variety of ways: social media links... Read More »

TOUCHED BY LYME: 2022’s virtual Lyme Fly-In is February 22-23

03
JAN
2022
People often ask me how they can get involved in Lyme disease advocacy. Among other suggestions, I always recommend taking part in the Center for Lyme Action’s annual Lyme Fly-In. This year it will be held February 22-23. What is it? An opportunity for Lyme advocates... Read More »

TOUCHED BY LYME: “Deep Places” explores one man’s Lyme fight

01
DEC
2021
Ross Douthat was a busy man. In addition to his regular opinion column in the New York Times, he wrote books, gave speeches, traveled, interviewed people, and was often interviewed himself. In 2015, he and his wife had two kids and another on the way. They decided to leave... Read More »

TOUCHED BY LYME: Lyme film “Your Labs are Normal” now on Vimeo

22
NOV
2021
Your Labs Are Normal is a powerful film that grew out of the Lyme-related experiences of a Black woman of Puerto Rican descent living in New York City. And I’ll wager that the universal aspect of what’s shown in the movie will resonate with most people with Lyme, regardless of... Read More »

TOUCHED BY LYME: Helping families with Lyme re-capture their joy

04
NOV
2021
Gloria Kim, a mother of three from New Jersey, fell into the Lyme world when her son was bitten by a tick at a young age. As a result, her family has been dealing with chronic Lyme and co-infections for the last 14 years. And as she learned early on, Lyme disease affects the... Read More »

TOUCHED BY LYME: Raising awareness, one car magnet at a time

28
OCT
2021
A Pennsylvania teenager and her mom have come up with a great way to raise Lyme disease awareness in their community. They want to share the idea with everyone. And it’s so easy, you could even do it from bed. Sarah P, who prefers not to give her last name, was bitten by a tick... Read More »

TOUCHED BY LYME: Helping the brain heal from Lyme and mold

27
OCT
2021
The Chronic Comeback podcast seeks to focus on the positives and steer away from the negatives of chronic illness. Every week, UK-based host Phil Hadfield interviews people who have healed–or are in the midst of healing–from long-term health conditions.... Read More »
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