LymeDisease.org: education, advocacy and research for Lyme disease
Do You Have Lyme Disease?
CHECK YOUR SYMPTOMS
Donate icon with text
Donate Now
MyLymeData
Menu

Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as Vice-President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

TOUCHED BY LYME: Lyme awareness in the time of coronavirus

13
MAR
2020
cancelled
I was scheduled to address the Redbud Chapter of the Audubon Society on March 19. My talk, “What birders need to know about ticks and Lyme disease,” has been postponed for now. A casualty of “social distancing,” due to COVID-19. The 6th Annual Midcoast Lyme Disease Support and... Read More »

TOUCHED BY LYME: Proxy votes violate spirit of TBD Working Group

05
MAR
2020
tbdwg--12
The federal Tick-Borne Disease Working Group held two days of meetings in Philadelphia this week. I watched the live-streamed proceedings via YouTube both days. On the second day, I gave the following public comments via telephone: My name is Dorothy Leland and I am... Read More »

TOUCHED BY LYME: Flying in to Washington to lobby for increased Lyme funding

17
FEB
2020
Dorothy Leland & Bonnie Crater
They call it a “fly-in.” Advocates from throughout the country converge on the US Capitol to talk with their Senators and Congressional representatives. (Of course, not everybody arrives by airplane…but they do come from all over!) I was pleased and proud to join the Center for... Read More »

TOUCHED BY LYME: “The only thing to do is push through” says Justin Bieber

11
FEB
2020
Justin Bieber
The fifth of Justin Bieber’s 10-part autobiographical documentary series has been released on YouTube. It finally gives details about the superstar’s mental health issues and his diagnosis and treatment for Lyme disease. Some of the specifics are pretty raw. The... Read More »

TOUCHED BY LYME: CDC allows “possibility” of mother-fetus Lyme transmission

07
FEB
2020
CDC pregnancy and Lyme
It’s bad enough to have Lyme disease yourself. But a mother’s realization that she has passed the illness to her children during pregnancy brings a special kind of heartbreak. This is all made worse by the fact that medical authorities have for years insisted that maternal-fetal... Read More »

TOUCHED BY LYME: CDC’s map gives wrong impression. There are no “safe” states.

05
FEB
2020
TBDWG comments
Here’s what I told the federal Tick-Borne Disease Working Group last week. They gave me three minutes for public comment by telephone. My name is Dorothy Leland and I’m Vice-president of LymeDisease.org. I live in California, where my daughter contracted Lyme disease and... Read More »

TOUCHED BY LYME: Vote now to recognize “Lyme and Reason” for excellence

24
JAN
2020
lyme and reason
Fox5NY has done a stellar job of covering Lyme disease in recent years. This has included three half-hour programs in its “Lyme and Reason” series. The most recent one, Lyme and Reason: Battles and Breakthroughs Against Lyme Disease, has been nominated as a finalist in the 2020... Read More »

TOUCHED BY LYME: “Lyme Action Fly-In” planned for Washington DC

17
JAN
2020
Lyme Lobby Day
Getting the Kay Hagan TICK Act signed into law was an important step in the right direction for the Lyme community. But the job isn’t over yet. You’ll recall that the TICK Act recommends $150 million for vector-borne diseases over a five-year period. However, federal funding... Read More »

TOUCHED BY LYME: Justin Bieber’s Lyme disease story lights up the internet

10
JAN
2020
justin bieber has lyme disease
Canadian pop superstar Justin Bieber lit up the internet this week, by announcing to the world that he has Lyme disease. Of course, I don’t wish this miserable illness on anybody. But there’s no denying that when a famous person says they have Lyme disease, it makes news.... Read More »
‹ Previous123456Next ›Last »
Join LymeDisease.org big green button
Touched By Lyme Archives

News & Blogs

The Lyme Times

Lyme Disease Symptom Checklist
Find A Lyme Disease Physician
View MyLymeData Videos
Visit MyLymeData

About LymeDisease.org

LymeDisease.org is a non-profit
501(c)(3) that serves the patient community through advocacy, education and research.

Join

Support LymeDisease.org
Become a member.

Contact Us

Comments? Questions?
Ask your questions here.

© 2020 LymeDisease.org   |   LymeDisease.org PO Box 716, San Ramon, CA 94583   |   Privacy Policy   |   Terms of Use   |   Sitemap
Translate »