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Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as Vice-President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

TOUCHED BY LYME: “The Red Ring” takes a global look at Lyme disease

05
MAY
2021
In 2011, Finnish filmmaker Joonas Berghäll was living his dream, making films about important topics. He went to Kenya to direct a documentary about women’s rights in that country. “I was working outside for three weeks and I felt good and strong,” he remembers. That changed... Read More »

TOUCHED BY LYME: “A very funny play about Lyme disease”

26
APR
2021
How humorous can a person be when talking about tick-borne illness? Now’s our chance to find out! On Thursday, May 6, there will be a livestreamed event that seeks to answer that question. It is a reading of the latest draft of a play-in-progress called The Great Imitator.... Read More »

TOUCHED BY LYME: How to add a Lyme awareness frame on Facebook

22
APR
2021
May is Lyme Disease Awareness Month. During this time, many of you use Facebook to help educate your family, friends and community about tick-borne diseases. We’ve come up with a little something to help you turn every post of yours into a Lyme awareness message. It’s... Read More »

TOUCHED BY LYME: Easy way to ask your Representative for Lyme funding

20
APR
2021
Lyme Caucus letters
Lyme activists from throughout the country–in concert with the Center for Lyme Action–have been stepping up to advocate for increased federal funding for Lyme disease. Now there’s a simple way for YOU to add your voice. It will truly take only a moment of your... Read More »

TOUCHED BY LYME: Long-haul COVID “isn’t as unique as we thought”

09
APR
2021
long haul lessons
In spring 2020, reports of COVID “long haulers” started showing up online and on TV news shows. These are people whose COVID-19 infections have supposedly cleared, yet they continue to experience debilitating symptoms, particularly severe fatigue. As such reports... Read More »

TOUCHED BY LYME: If your teen has mental health problems, read this

29
MAR
2021
Dr. Kenneth Bock
By the time they turn 18, as many as 50 percent of all children and teens will meet the diagnostic criteria for at least one mental health disorder. So says Dr. Kenneth Bock, who has practiced integrative medicine in New York state for 35 years. During much of that time, he has... Read More »

TOUCHED BY LYME: Ukulele brings joy and healing, even when bedridden

15
MAR
2021
Rebecca Samples
About seven years ago, musician Rebecca Samples got really sick. About the same time, her then-3-year-old daughter also got really sick. They were living in North Carolina at the time and had experienced multiple tick bites shortly before falling ill. Both were diagnosed with... Read More »

TOUCHED BY LYME: When Lyme disease is mistaken for child abuse

03
MAR
2021
child abuse
Misdiagnosis of Lyme disease is a huge problem. Doctors too often rely on misunderstood and/or faulty information to rule out the illness. (Examples: there’s no Lyme in our county…you have no rash…you have a rash, but it doesn’t look like a Target logo…etc.) As a result,... Read More »

TOUCHED BY LYME: Lyme video–“One Little Bite”–packs a big wallop

01
MAR
2021
monica white Lyme video
Monica White once worked as a wildlife biologist and a wildland firefighter. Later, after the birth of her second child, she developed a seriously debilitating illness. Soon, her children showed symptoms, too. It took a long time to figure it out. The doctors she consulted... Read More »
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