News

By Liz Horn A biobank, also known as a biorepository, is a collection of biological specimens or samples created for medical researchers to study a specific disease or condition. Scientists need blood and tissue samples from people impacted by a disease in order to conduct... Read More »

Eighty-seven organizations in 11 countries are now on record as opposing the IDSA’s proposed Lyme disease treatment guidelines. The most recent one to join the Ad Hoc Patient and Physician Coalition is borelioza.org – Lyme Poland. Other countries represented include the US,... Read More »

Roche, a Swiss multinational pharmaceutical company, has received approval from the US Food and Drug Administration for a test to screen donated blood for Babesia. If undetected, Babesia can be fatal in patients receiving blood transfusions from infected donors. The newly... Read More »

Last May, LymeDisease.org launched a petition asking for Dr. Eugene Shapiro’s removal from the federal Tick-Borne Disease Working Group (TBDWG). More than 31, 000 people have signed it. We have contacted the Department of Health and Human Services (HHS) many times about... Read More »

The federal Tick-Borne Disease Working Group held a web-based meeting on September 12. Members of sub-committees were announced, with progress reports. LymeDisease.org’s Lonnie Marcum live-tweeted the event. Here’s a compendium of what she posted during the meeting. Read More »

By Mary Beth Pfeiffer In August of 2013, Joseph Elone died suddenly when Lyme disease infected his heart. He was 17 years old and had just returned from summer camp in Rhode Island, which then had the nation’s seventh highest Lyme disease rate. Today, a wrongful death lawsuit,... Read More »

A bill calling for tick warning signs in New York state parks has been signed into law. The measure, sponsored by State Senator Sue Serino and Assemblymember Didi Barrett, requires installing such signage at state-managed parks. It also allows the state department of Parks,... Read More »

The Ad Hoc Patient and Physician Coalition to protest the IDSA Lyme guidelines continues to grow–both in the United States and abroad. At this writing, 77 organizations in eight countries have endorsed the coalition’s rebuttal to the guidelines. (Update: 87 groups in... Read More »

Several ticks recently collected along the Lopez Canyon Trail in San Diego County’s Sorrento Valley have tested positive for tularemia. Tularemia, also known as “rabbit fever,” is often found in wild hares, rabbits and rodents. This is the sixth time this year that... Read More »