Focus – Opinions and Features

Mary Lorusso-DiBara gave the following public comments at the November 17 online meeting of the federal Tick-Borne Disease Working Group. Today I represent our family – five siblings, their children and spouses who have been ravaged physically, emotionally, and financially by... Read More »

Janice Sutton gave the following remarks to the Tick-Borne Disease Working Group on October 27. As a critical care nurse for over a decade, I saved lives, using current–not antiquated–science. But when it came time to save my own 14-year-old daughter’s life from... Read More »

Phyllis Mervine delivered the following verbal comments to the Tick-Borne Disease Working Group on October 27. My name is Phyllis Mervine. I’m the President and Founder of LymeDisease.org. I want to talk about how the CDC incidence map is not working for California. I have talked... Read More »

By Carolyn Degnan One of the biggest problems that chronically ill patients face is “gaslighting” from their physicians/practitioners. I’ve been familiar with that term when talking about a personal relationship. However, I had never heard it applied to a doctor/patient... Read More »

by Arlene Brailey For eight years, my son has been fighting a war against Lyme disease, with me alongside him. I have endured countless sleepless nights, anxious that I am pushing too hard, but more troubled I have not done enough; fearful of backlash from respected colleagues... Read More »

Carl Tuttle, a long-time Lyme activist from New Hampshire, gave the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15. This comment is directed to Dr. Eugene Shapiro. Dr. Shapiro, I sent you an email on September 2, with a list of references... Read More »

Erin Walker delivered the following remarks by telephone to the Tick-Borne Disease Working Group on Sept. 15, 2020. My name is Erin Walker and I am the wife of PGA Tour winner Jimmy Walker. I am also on the Board of Directors the Global Lyme Alliance. After five months of... Read More »

The following was submitted as a written public comment to the federal Tick-Borne Disease Working Group. By Monica White I am writing today as an advocate, as well as a patient, wife and mother of two children with persistent Lyme disease and multiple co-infections. I served as a... Read More »

Lyme advocate Savannah Marcum has compiled the following video tribute to Dr. Neil Spector, with  background music by Dana Parish. (Parish wrote the song based on one of Spector’s poems. It was played at his memorial service in July.) In Loving Memory of Neil Spector: June... Read More »