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TOUCHED BY LYME: Working group’s abrupt shift excludes Lyme patients

JUN

2019

...the opening meeting in 2019. What a difference patient engagement makes in terms of how many people fill a meeting room! Squelching discussion of Lyme disease Dr. David H. Walker In a disturbing development at the June 4 meeting, newly appointed... Read More »

Historic increase in Lyme funding passes Congress; now goes to president

DEC

2020

...the Tick-Borne Disease Research Program did not increase, this important research program with Lyme community input did not decrease. In total – the federal government plans to spend $91M in FY21 vs. $55M in FY20, a 65%... Read More »

Final TBD Working Group report reflects patient contributions

MAR

2023

...D Working Group was formed as a Federal Advisory Committee, it was legally required to allow public comment—and boy, did the Lyme community deliver! Patients, caregivers and advocates have been marginalized for years, and they... Read More »

51 members named to TBD Working Group subcommittees

FEB

2018

Fourth meeting of Tick-Borne Disease Working Group

...de Leon, DVM, PhD, MS Director, Knipling-Bushland U.S. Livestock Insects Research Laboratory, United States Department of Agriculture-Agricultural Research Service Daniel E. Sonenshine, PhD Eminent Professor of Biological Science, Old Dominion... Read More »

LYMEPOLICYWONK: When decisions are foregone conclusions

DEC

2020

...her recognized by nor accountable to any patient group. Only recently were term limits for members posted on the website. All except three expire today. The terms for Soltysiak and Walker don’t expire for six months. Why the... Read More »