education, advocacy and research for Lyme disease
Do You Have Lyme Disease?

“The Quiet Epidemic” – A Fundraiser

Why are we screening the movie? Proceeds from the screening of “The Quiet Epidemic” will go to help fund’s research project, MYLYMEDATA. Thus far over 17,000 patients have joined the project, with a goal of 20,000 patients by 2024. The data is critical to help researchers find a resolution to chronic Lyme disease and enhance patient care.

I want to contribute but I am not in Utah. No problem, you don’t have to be in Utah to support this fundraiser. Donations are welcome. Click here to donate.

Who are the Hosts? Both Josh and Ethan have individually suffered from Lyme disease and want to educate the general public about the dangers of the disease, the lack of public awareness, and the lack of awareness in the medical community. You can read their stories below.

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Learn more about “The Quiet Epidemic” documentary:

After years of living with mysterious symptoms, a young girl from Brooklyn and a Duke University scientist are diagnosed with a disease said to not exist: Chronic Lyme disease. The Quiet Epidemic follows their search for answers, which lands them in the middle of a vicious medical debate. What begins as a patient story evolves into an investigation into the history of Lyme disease, dating back to its discovery in 1975. A paper trail of suppressed scientific research, and buried documents reveals why ticks-and the diseases they carry-have been allowed to quietly spread around the globe.

Ethan and Josh - Lyme Disease Quiet Epidemic

Josh and Ethan’s story

When Ethan and Josh met in preschool, little did they know that they’d be united with similar challenges fighting Lyme Disease. After undergoing years of treatment, Ethan and Josh have transformed from being bedridden until the afternoon due to severe fatigue, to becoming fierce advocates fighting for Lyme disease patients to receive the support they deserve. The Centers for Disease Control and Prevention estimate that 476,000 people are diagnosed with Lyme disease in the US every year. However, because diagnosing Lyme can be difficult, many people who actually have Lyme may be misdiagnosed with other conditions. Many experts believe the true number of cases is much higher. Ethan and Josh have made it their purpose to raise awareness on this quiet epidemic and help others who may have Lyme get the help they deserve. Together they’ve decided to rise to the challenge of raising $50,000 to fight this battle. Thank you for your donations and your support of this effort.

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How Your Support Makes a Difference

The Top Five Things MyLymeData Is Investigating:

  • What is the natural course or progression of Lyme disease?
  • Which treatments (prescription or alternative) are the most effective?
  • Some patients have recovered and are well. What treatment made the difference?
  • What are the harms or risks associated with different treatments?
  • What role do co-infections play in the course of the illness?

Click on the boxes below to learn more about MyLymeData.

MyLymeData Lyme Disease Research Viz Blog

MyLymeData Viz Blog

MyLymeData Viz provides the community with results from MyLymeData providing the data that will accelerate the pace of research in Lyme disease.

About MyLymeData Lyme Disease Research

About MyLymeData

MyLymeData lets Lyme disease patients learn from each other and provides data that can help drive Lyme disease research to improve their lives.

What Makes MyLymeData Lyme Research Different

What Makes MyLymeData Different

MyLymeData is the first national large-scale study of chronic Lyme disease. This study is different from all other Lyme disease research studies because it’s patient-powered BIG DATA research.

Watch Videos About MyLymeData Lyme Disease Research

MyLymeData Videos

Watch videos about MyLymeData Lyme disease research where thousands of patients are joining together, pooling their data and are able to see which treatments are working best.

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