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Touched By Lyme

an image of Dorothy Kupcha Leland

Dorothy Kupcha Leland

This blog has several goals. First, to explore the personal side of Lyme disease and how it affects individuals and families. Second, to highlight useful information for people seeking answers about this complicated illness. Third, to help foster a sense of unity and shared purpose among the many diverse members of the Lyme community. Dorothy, who serves as President of LymeDisease.org, has a family member with Lyme disease. She is co-author of a book called When Your Child Has Lyme Disease: A Parent's Survival Guide.

Does your partner have Lyme disease? This book’s for you.

17
AUG
2022
When Fred Diamond fell in love with a woman who had Lyme disease, he didn’t have a clue about what she was going through. Even after they’d been together 11 years, he came to realize that he STILL didn’t really understand the challenges she faced. So, he decided to change that.... Read More »

Is there a link between Lyme disease and breast cancer?

27
JUL
2022
Joanne Drayson is a Lyme patient/advocate in the UK. She and I have been Facebook friends for many years. She writes a blog called “Looking at Lyme disease—MSIDS.” In addition to discussing her personal Lyme experiences, she also shares a lot of information about issues related... Read More »

“Ninja Foods” helps kids with Lyme choose food that heals, not hurts

13
JUL
2022
People being treated for Lyme disease often have to change what they eat. Eliminating sugar and gluten are two biggies. Many must also avoid dairy and eggs. Eating differently than you are used to often means cutting out your favorite foods. A tough sell for anybody, that’s... Read More »

When Lyme is misdiagnosed as mental illness–“A road to nowhere”

23
JUN
2022
Depression, anxiety, and other mental symptoms are frustratingly common in people with long-term Lyme disease. Why is this? Some might attribute it to the fact that the patient’s life has gotten so tough lately. Pain, fatigue, insomnia and other “gifts” of Lyme... Read More »

How new treatment approaches help chronic Lyme patients

21
JUN
2022
Pamela Weintraub is a science journalist, Lyme disease survivor, and author of the groundbreaking book Cure Unknown: Inside the Lyme Epidemic. I highly recommend you read her most recent article, entitled “A New Look at Chronic Lyme.” You can find it online at... Read More »

He bucked the establishment to help kids recover from Lyme disease

08
JUN
2022
There has been an outpouring of emotion in the wake of the recent death of Lyme pediatrician Dr. Charles Ray Jones. Many of those who knew him—parents, children, advocates, and medical colleagues—have posted touching tributes on social media and online support groups. But people... Read More »

TOUCHED BY LYME: Avoiding a heart transplant by treating Lyme disease

16
MAY
2022
Dr. Steven Phillips is a well-known Lyme specialist and co-author of the book: Chronic: The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again. He also produces an email newsletter called Zerospin, where he takes a deep look at various health-related matters.... Read More »

TOUCHED BY LYME: #TickCheckChallenge teaches and inspires

09
MAY
2022
Last year, PA Lyme Resource Network and Invisible International came up with a real winner of a way to encourage kids to do tick checks. In fact, in 2021, their #TickCheckChallenge won the first-ever Health and Human Services LymeX Healthathon. They have re-launched the challenge... Read More »

TOUCHED BY LYME: Remembering a Lyme disease pioneer

22
APR
2022
This week, our community has mourned the loss of Nick Harris, PhD, a pioneer in the field of Lyme disease testing and a staunch supporter of Lyme patients throughout the world. If you have ever had an IGeneX test or have been treated by an ILADS-affiliated physician–you... Read More »
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