A message from LymeDisease.org’s Founder and President
by Phyllis Mervine
I started this organization more than 30 years ago to empower people with Lyme disease.
Our aim: to change a medical system that ignores us, and to push for new tests and treatments to help people reclaim their lives. Three decades in, those goals are more important than ever.
I believe the first requirement for empowerment is knowledge.
Our community needs information–about the science, the politics, and the structural barriers that make it hard for Lyme patients to get the medical treatment they need.
We also need inspiration–who is getting better and how did they accomplish that? How are advocates working on our behalf? How can individuals get involved?
Over the years, LymeDisease.org has grown into the largest communications hub regarding Lyme and other tick-borne diseases. We share information with millions of people every year via our website, social media, newsletters and our digital journal, The Lyme Times.
Our patient-powered research project MyLymeData has enrolled more than 14,000 participants. They are making a key contribution towards future Lyme disease research.
Donations from people like you make it possible for this–and more–to happen.
Together, we amplify the patient voice to drive legislative change. Together, we develop the data necessary to drive health care policy change. Together, we are a powerful force!
2020 has been a year like no other. In spite of COVID 19, social unrest and challenges with the economy, LymeDisease.org has not wavered from its mission to educate, advocate, and conduct patient-driven research regarding Lyme and other tick-borne diseases.
There is strength in numbers, and we believe that with your support, we can change lives.
Phyllis Mervine has been educating and advocating on behalf of Lyme disease patients since 1989.