Leave a lasting legacy that will help raise awareness and fund research that can improve Lyme disease patients’ lives.
It is a wonderful way to leave a lasting legacy and help LymeDisease.org continue to pursue equity for our Lyme patient population. LymeDisease.org is the oldest Lyme organization and the only one focused on patient advocacy, treatments, legislation, insurance issues and our patient centered research project, the MyLymeData patient registry and research platform. A legacy gift will help us to continue to fight for patient’s rights since the battle is far from over.
There are several ways you can leave a lasting legacy that will help benefit the Lyme patient community. What ever vehicle you choose, your legacy funds will be used judiciously to further LymeDisease.org’s patient centered mission. Your gift can be given to the general fund or it can also be a restricted research donation to fund MyLymeData or other research projects.
Learn more about the MyLymeData patient registry and research project.
Before making a legacy donation, we suggest that you consult your tax advisor or attorney to make the best choice for your situation.
You can name Lymedisease.org as a full or partial beneficiary of your life insurance policy. Life insurance donations are probably the easiest to set up using an existing policy or a brand new one. Please consult your insurance agent for specific details on plans and wording.
Retirement fund assets from a qualified plan or IRA can be heavily taxed depending on how they are distributed. Donating the assets to LymeDisease.org could be an opportunity to leave a legacy while possibly avoiding income taxes. Retirement funds that are considered a “qualified plan” include IRAs, Keoghs, qualifies pensions, profit-sharing plans and a deferred compensation plan.
You can set up your will or trust to donate a gift of money, stocks, bonds, real estate or other personal property. These items can also be given during your lifetime to LymeDisease.org. If you are interested in making a donation of stock please email email@example.com for LymeDisease.org’s DTC Clearing number and account information.
While most estate plans focus on leaving wealth to your heirs, some people wish to provide for a charitable cause such as LymeDisease.org thru their estates. A trust is a vehicle that allows you to do that. Please contact your legal advisor for more information.
LymeDisease.org seeks to make the patient voice stronger, to support patient-centered research, and to create a future where Lyme patients can receive the treatments they need to get well. Its focus is on large scale science-based advocacy, communications and big data research.
Founded in 1989, it is one of the oldest, largest, and most trusted sources of patient information on Lyme disease, drawing millions of unique website visitors a year. Its MyLymeData patient registry and research platform has enrolled over 16,000 patients and is among the top 5% of patient-led registries in the nation. Its communications network distributes resources and educates the public about the science of tick-borne diseases via website content, blogs, social media, and an online journal, the Lyme Times.
You can also donate to LymeDisease.org by clicking here or through the mail. Please make checks payable to LymeDisease.org and mail them to LymeDisease.org, PO Box 716, San Ramon, CA 94583.
If you have any questions, please call Carolyn Degnan, COO at 510-807-0133 or Barbara Barsocchini at 310-456-9931 (PST daytime only).