My recent request to deliver verbal comments to the federal Tick-Borne Disease Working Group on May 10 was granted. Here’s what I said: Good afternoon. First, I’d like to thank you all for the work the TBDWG is doing and for giving me the opportunity to comment. My... Read More »

The federal Tick-Borne Disease Working Group meets tomorrow, May 10. The main order of business will be to accept reports from six subcommittees that have been gathering information on behalf of the Working Group. The reports are intended to offer insights into gaps,... Read More »

If you have Lyme disease and live in the United States, we want YOU to enroll in MyLymeData. To sweeten the deal, in honor of Lyme Disease Awareness Month, the first 50 people to enroll in the month of May will get a special gift. Just fill out the form below. With more than... Read More »

KQED’s “Forum” is a highly rated interview program on San Francisco NPR radio station. On May 3, it broadcast an excellent discussion entitled “The Rise of Lyme Disease in Northern California.” Host Michael Krasny interviewed investigative journalist... Read More »

Robert Sabatino, a former New York City police officer, has been named as the newest public member of the federal Tick-Borne Disease Working Group. He fills the spot left vacant after the resignation of Karen Vanderhoof-Forschner. Sabatino is founder and executive director of... Read More »

The federal Tick-Borne Disease Working Group has several meetings coming up that you will be able to participate in from afar (and in some cases, in person.) Registration is required. The following information is from the Health and Human Services website.   May 10... Read More »

Washington Post, May 1, 2018 By Lena Sun The warmer weather of spring and summer means the start of tick and mosquito season and the diseases they transmit, including Lyme disease, Rocky Mountain spotted fever, West Nile and Zika. A new report from the Centers for Disease Control... Read More »

Meredith and Lillian, a mother and daughter duo, celebrated their birthdays this year by raising money for LymeDisease.org. They did this by using a new fundraising feature on Facebook. Here’s a sampling of people who have raised money for us since Facebook started this program a... Read More »

Sherill Franklin, a small business owner and patient advocate from Pennsylvania, will join the Access to Care Services and Support to Patients Subcommittee of the Tick-Borne Disease Working Group. She will replace Dr. Enid Haller, who is departing. The announcement was made on... Read More »