News

From the Center for Lyme Action: Join us for an exciting virtual event on January 22, where you can learn all about our upcoming Virtual Fly-In initiative. Our info session will cover everything you need to know about advocating for Lyme and tick-borne diseases with your members... Read More »

By Mary Beth Pfieffer Kim Collins was a massage therapist at the peak of her talent, beauty, and ambition, when, in 2008, she got Lyme disease. Despite antibiotic treatment, she developed brain lesions, slurred speech, vertigo, joint swelling, and debilitating pain…She... Read More »

On January 21, The Quiet Epidemic team and a variety of Lyme groups will launch a 10-day letter-writing campaign directed to President-elect Trump. The goal is to educate the new administration on the growing threat of Lyme and tick-borne diseases and urge its support of upcoming... Read More »

Real-world data from the largest U.S. Lyme disease registry, MyLymeData, shows current clinical trials for persistent Lyme disease (PLD) systematically exclude most patients who are clinically diagnosed with the condition. A groundbreaking analysis of over 4,000 patients reveals... Read More »

Update: This event has been cancelled. Message from HHS: The Tick-Borne Diseases and Associated Illnesses National Community Engagement Initiative scheduled for January 28th is canceled, as the new Administration considers its plan for managing federal policy and public... Read More »

If you are looking to make a contribution to LymeDisease.org before the end of 2024 for tax purposes, here are some helpful ways to give. Online donations can be made through December 31. (Click here.) Donation can be for general use, or you can designate it for MyLymeData... Read More »

California’s Board of Pharmacy (BOP) is considering regulation changes that would restrict access to certain alternative treatments that many Lyme patients rely on. Two items on the chopping block are IV glutathione and vitamin B12 shots. Crystal Frost, a Lyme patient who started... Read More »

On November 20, Connecticut Senator Richard Blumenthal hosted a special screening of the award-winning Lyme documentary The Quiet Epidemic at the US Capitol Visitors Center in Washington DC. The film was preceded by a discussion and Q&A with the film’s subjects, experts and... Read More »

California’s Board of Pharmacy (BOP) is considering regulation changes that would restrict access to certain alternative treatments that many Lyme patients rely on. Two items on the chopping block are IV glutathione and vitamin B12 shots. Crystal Frost, a Lyme patient who started... Read More »