by Lisa Kilion A recent New York Times opinion piece, Why I Didn’t Answer Your Email, discussed reasons why a parent of neurotypical, healthy children wouldn’t return an email. Her children needed help with homework, a snuggle before bedtime, reminders to clean up after... Read More »

Many people must travel for Lyme treatment. Unable to find the help she needed in New England, Kate Bowen of Vermont decided to visit a clinic in Arizona. She says just getting there in one piece is half the battle and offers the following advice to others who must travel while... Read More »

The Society to Improve Diagnosis in Medicine (SIDM) is a non-profit organization that focuses on the issue of diagnostic error. Misdiagnosis is quite common in Lyme disease and the consequences can be devastating. The SIDM website recently featured the personal story of... Read More »

Dr. Joseph Burrascano, one of the world’s leading experts on the diagnosis and treatment of Lyme disease, is a founding member of the International Lyme and Associated Diseases Society (ILADS). Recently, he recorded this video for ILADS, to capture his knowledge of the... Read More »

By Jill Ross While many people anticipate the holidays with excitement, those suffering with chronic illnesses may approach the holiday season with anxiety and even dread. A chronic illness can make normal everyday life challenging enough. The extra expectations and demands of... Read More »

The Canadian government recently announced new investment in Lyme disease research. However, Canadian Lyme advocates fear that the patient voice will be excluded from the decision-making process. In the following article, the Canadian Lyme Consortium (CLC)–made up of... Read More »

By Kristina Manscill My heart goes out to all the parents out there who must try to heal from Lyme disease, while also raising children. It can be a depressing journey to try and have the patience and stamina required in parenting, when you can hardly get out of bed and take care... Read More »

Verbal Comments to the Tick-borne Diseases Working Group, December 3, 2018 by Phyllis Mervine I’m Phyllis Mervine, Founder and President of the patient advocacy nonprofit LymeDisease.org. I’m going to focus on the November 26 letter sent by the Infectious Diseases Society of... Read More »

by Amy B. Scher At 28 years old, and after years of suffering from medical issues that no doctor across the U.S. could unravel, I was finally given a name to the condition that had taken almost my entire life away: late-stage Lyme disease. I took my diagnosis like an over-sized... Read More »