Verbal Comments to the Tick-borne Diseases Working Group, December 3, 2018 by Phyllis Mervine I’m Phyllis Mervine, Founder and President of the patient advocacy nonprofit LymeDisease.org. I’m going to focus on the November 26 letter sent by the Infectious Diseases Society of... Read More »

by Amy B. Scher At 28 years old, and after years of suffering from medical issues that no doctor across the U.S. could unravel, I was finally given a name to the condition that had taken almost my entire life away: late-stage Lyme disease. I took my diagnosis like an over-sized... Read More »

By Donna Falcone Picture a couple raising two sons, hundreds of miles from any other family. The husband comes home from work and finds his wife lying in bed right where he left her that morning… again.  He asks “What did you do today?” Because she is feeling inadequate, the wife... Read More »

By Savannah Marcum After six long years of being deeply chronically ill — suffering from Lyme disease, a handful of co-infections and mast cell activation syndrome (MCAS) — I’m now in remission, going from 0% to 70-80% better in just a year and a half. People are always asking me... Read More »

Tick bite prevention is a big issue in Barnstable County, Massachusetts, which includes Cape Cod. The region is heavily populated with ticks and the infections they can carry, including Lyme disease and babesia. One way the county seeks to educate its residents is with a newly... Read More »

by Shona Curley For 20 years, I have been teaching Pilates—a gentle method of exercise that promotes flexibility and strength. I became interested in using Pilates for rehabilitation work a long time ago, due to my own chronic neck and shoulder pain, which I only recently... Read More »

by Adrian Baranchuk, MD, FACC ,FRCPC, FCCS, and Cynthia Yeung, BSc The incidence of Lyme disease, a tick-borne bacterial infection, is rapidly increasing in North America. Risk modeling suggests that the incidence of Lyme disease will continue to rise as the migratory birds that... Read More »

by Sylvia Janicki On a balmy early-summer day in 2014, in the bucolic Mississippi countryside, I found a tick burrowed into the side of my right leg. Shortly after, a bull’s-eye rash formed around the tick-bite, and then I fell ill, developing flu-like symptoms, muscle and joint... Read More »

By David Michael Conner As so many people who live with Lyme disease will attest, just about everything Lyme related can be complex, difficult to understand, and sometimes even self-contradictory. This includes how Lyme disease is reported. As global warming drives tick... Read More »