My 31-Year Journey to a Babesiosis Diagnosis Getting diagnosed is half the battle. It changed my life. I responded to treatment.

By Wendy Simpson

I  always say to others with a chronic illness that getting diagnosed is half the battle. But what if that battle takes 31 years? What does it take to motivate yourself to seek out a diagnosis for most of your life, and is it worth it? I believe the answer to that is yes!

I grew up in a suburb of Chicago, and when I was 16, I worked as a camp counselor across the street from the Sand Ridge Nature Center. It was a forest preserve we would take our campers to a few times a week, and we spent the rest of the time at our day camp site.

At the end of that summer, I was entering my senior year of high school. And that September is when I started noticing a slowly growing number of symptoms and deficits that no one else around me seemed to be experiencing…… Join or login below to continue reading.

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3 Reader Comments

  1. I was being treated with Doxy for Lyme in September of 2016 when I developed terrific night sweats for two nights ending up going to the emergency room by ambulance. Fortunately my primary Dr. had done the labs a week before and that morning the tests came back positive for Babesiosis. I was immediately put on IV Atovaquone (Mephron) and azithromycin and was hospitalized for 3 days. After going home I had to go through two, two weeks of oral treatment before getting a negative test for the Babesiosis. I am 74 and my immune system has taken a real beating from this. Started at 180 lbs. went down to 153, now stable at 160.

  2. I was diagnosed with Lyme 4 years ago but have been suffering with symptoms for 15 years. Recently I was diagnosed with Babesia an given oral Mephron and azithromycin for a month. I ggot so sick that I coul not continue the medication. I once was healthy at 135 lbs. I now weight less than 90 lbs and I can’t eat anything without getting severe stomach aches and diarehea, no gluten, no soy, no dairy, no sugar only plant based protein shakes. I feel like I am dying. Nothing works.

    1. I feel your pain. I was just diagnosed and have had this for over 20 years. At this point the meds are killing me.

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