MyLymeData: A Patient-Centered Presentation to the Tick-Borne Disease Working Group Lorraine Johnson, CEO of, shares data from the MyLymeData research project as well as her own personal experiences with Lyme disease.

By Lorraine Johnson, JD, MBA

O n December 11, 2017 I had the privilege of addressing the inaugural meeting of the federal Tick-Borne Diseases Working Group. The first meeting was open to the public and invited patients, family members, and patient advocates to discuss a wide variety of topics related to tick-borne illness.

As the CEO of, the largest communications network for individuals with Lyme disease, I was in a unique position to share not only my perspective as a former Lyme patient, but also as the principal investigator for MyLymeData, a research project with more than 11,000 participants.

The meeting was held in Washington, D.C., and I delivered my presentation remotely……… Join or login below to continue reading.

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