LymeTimes Special Issue
Tick-Borne Disease Working Group

Table Of Contents
LymeTimes Tick-Borne Disease Working Group Special Issue
How the Patient Voice Has Impacted the Tick-Borne Disease Working Group

Patients are coming together to have an impact and create change in Lyme disease policy.

By Phyllis Mervine

Balanced Lyme Disease Stories Benefit Tick-Borne Disease Working Group

The purpose of having balance Lyme disease stories from Lyme patients is to provide some human interest to incentivize Congress to fund Lyme disease research.

By Phyllis Mervine

Patients Involved with Working Group Offer Their Opinions

Members of the Tick-Borne Diseases Working Group share their feelings about what being a part of the process has meant to them.

By Phyllis Mervine

Two Standards of Care for Lyme Disease’s Lorraine Johnson gave the following verbal comments during the Tick-Borne Disease Working Group’s June 21 meeting.

By Lorraine Johnson, JD, MBA

Lyme Disease Vaccines: Why We Care

You don’t have to be an “anti-vaxxer” in order to raise questions about the safety and efficacy of a Lyme disease vaccine.

By Phyllis Mervine

MyLymeData: A Patient-Centered Presentation to the TBDWG

Lorraine Johnson, CEO of, shares with the Tick-Borne Diseases Working Group data from the MyLymeData research project as well as her own personal experiences with Lyme disease.

By Lorraine Johnson, JD, MBA

Lyme Disease Costs May Exceed $75 Billion per Year

The CDC’s recent increase in estimated Lyme disease cases per year means we also need to update how we view real-world economic costs for Lyme patients. Unfortunately, Lyme patients’ costs continue to soar.

By Lorraine Johnson, JD, MBA

Minority Opinion Is a Critical Element of the Working Group Report

To help ensure that a diversity of viewpoints is represented, The Tick-Borne Disease Working Group provides a channel for minority opinions in its report to Congress.

By Phyllis Mervine

One-Dose Doxy

Dorothy Leland submitted the following comments to the Tick-Borne Disease Working Group in advance of the June 21, 2018, meeting.

By Phyllis Mervine

Overview of the Tick-Borne Disease Working Group: What Has Been Accomplished so Far?

TBDWG subcommittees have been working nearly around the clock to ensure high-integrity reports will be ready for submission to Congress later this year and will include the most comprehensive viewpoints possible.

By Lorraine Johnson, JD, MBA

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