Putting Lyme Behind You: Basic Lyme for Patients, Family and Friends
Lyme Disease and MSIDS: Diagnosis and Treatment Protocols for the Chronically Ill Patient
Review of Lyme disease Diagnosis and Treatment
Using Integrative Medicine to Heal from Lyme Disease
Patients are coming together to have an impact and create change in Lyme disease policy.
By Phyllis Mervine
The purpose of having balance Lyme disease stories from Lyme patients is to provide some human interest to incentivize Congress to fund Lyme disease research.
Members of the Tick-Borne Diseases Working Group share their feelings about what being a part of the process has meant to them.
LymeDisease.org’s Lorraine Johnson gave the following verbal comments during the Tick-Borne Disease Working Group’s June 21 meeting.
By Lorraine Johnson, JD, MBA
You don’t have to be an “anti-vaxxer” in order to raise questions about the safety and efficacy of a Lyme disease vaccine.
Patricia Smith, president of LDA, identifies lessons we can learn from the LYMErix Lyme disease vaccine story and pitfalls we can hopefully avoid in the future.
By Pat Smith
Over a period of six months, there were a number of personnel changes.
By Dorothy Kupcha Leland
In the public comments of the Tick-Borne Diseases Working Group meeting, two testimonies left an especially powerful impact.
Serious condition is not an infection, but rather an immune response triggered by a tick bite
Phyllis Mervine’s Written Testimony to the Tick-Borne Diseases Working Group’s Meeting #6, June 21, 2018. Mervine is president and founder of LymeDisease.org.
We need accurate data about ticks, the infections they carry, and the number of tick-borne disease cases in all parts of the country.
Lorraine Johnson, CEO of LymeDisease.org, shares with the Tick-Borne Diseases Working Group data from the MyLymeData research project as well as her own personal experiences with Lyme disease.
The CDC’s recent increase in estimated Lyme disease cases per year means we also need to update how we view real-world economic costs for Lyme patients. Unfortunately, Lyme patients’ costs continue to soar.
To help ensure that a diversity of viewpoints is represented, The Tick-Borne Disease Working Group provides a channel for minority opinions in its report to Congress.
Dorothy Leland submitted the following comments to the Tick-Borne Disease Working Group in advance of the June 21, 2018, meeting.
TBDWG subcommittees have been working nearly around the clock to ensure high-integrity reports will be ready for submission to Congress later this year and will include the most comprehensive viewpoints possible.
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